A day in which we raise awareness of SUDEP and honor the memories of those we’ve lost by bringing the epilepsy community together.

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SUDEP Action Day 2022
#TalkSUDEPnow

#SUDEPActionDay2022
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Today is SUDEP Action Day ([link removed]) , a day in which we honor the memories of those we’ve lost by bringing the epilepsy community together to raise awareness of SUDEP (Sudden Unexpected Death in Epilepsy) ([link removed]) , to educate on the risks factors associated with SUDEP, and to encourage people with epilepsy to engage in prevention strategies to reduce the occurrence of SUDEP.

In support of SUDEP Action Day, we have developed informative content for you to watch, read, and share all week long. SUDEP ([link removed]) can happen to anyone with epilepsy. It is heartbreaking that we still hear from parents, caregivers, and loved ones that they were never told about SUDEP and how to minimize the risks. Please encourage your friends and family to learn more about SUDEP and to share broadly all week the programs below to help raise awareness:

* Infographics: Images containing data and graphics on SUDEP Risk Factors and Ways to Mitigate Risk ([link removed]) for sharing on Facebook ([link removed]) , Instagram ([link removed]) , and Twitter ([link removed]) .
* Seizing Life®: Today's episode of Seizing Life ([link removed]) with Hannah Whitten, a CURE Epilepsy Board Member who lost her brother to SUDEP. The episode will be available on Facebook ([link removed]) on today at 12 pm CT and then on our website ([link removed]) shortly thereafter.
* CURE Epilepsy Discovery: Tomorrow’s CURE Epilepsy Discovery highlights new SUDEP findings resulting from research funded by CURE Epilepsy. The Discovery will be published on the News page of our website ([link removed]) .
* Webinar: SUDEP & the Heart ([link removed]) . This webinar will help viewers learn how altered cardiac function may lead to SUDEP and why it is critical for the epilepsy community to take a holistic approach to fully understand the biological changes that ultimately cause SUDEP.
* Webinar: Breathing and SUDEP: Research & the Influence of Seizures on the Respiratory System ([link removed]) . This webinar helps viewers understand how inherited neuronal or cardiac diseases may lead to electrical disturbances in both the brain and heart, how altered cardiac function may lead to SUDEP, and why it is critical for the epilepsy community to take a holistic approach to fully understand biological changes that ultimately cause SUDEP.

Follow us on Facebook ([link removed]) , Instagram ([link removed]) , and Twitter ([link removed]) to see content for SUDEP Action Day 2022 ([link removed]) .

Use or search the hashtag #TalkSUDEPnow ([link removed]) so we can raise SUDEP awareness and so individuals within the epilepsy community can reduce the SUDEP risk to themselves or their loved ones living with epilepsy.
Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE Epilepsy is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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