The latest updates for August 18, 2022


([link removed])


Journal of Cystic Fibrosis Spotlights the Evolving Cystic Fibrosis Care Model

People with cystic fibrosis are living longer, healthier lives because of highly specialized care and treatments available today, including Trikafta.
The Journal of Cystic Fibrosis ([link removed])
recently published a commentary reviewing how shifts such as these will affect the CF care model and offers recommendations to improve the quality of care.

Read about the study » ([link removed])




Getting Ready for Back to School

Your child may feel uncomfortable if they are among the few wearing masks at school. Remind them that masking helps keep them healthy.

* Practice at home: “I am wearing my mask to stop spreading germs,” or “My parents asked me to keep wearing a mask at school.”
* Remind the school that a mask protects your child from germs that could make their CF worse.
* Recruit teachers, staff, and other students to help others understand why your child needs to take these precautions.

Read more about CF and school » ([link removed])


([link removed])




Help Shape Research, Care, and CF Programs

Your unique experiences with cystic fibrosis can help make a difference for the CF community. Community Voice provides an opportunity to
share personal experiences, perspectives, priorities, and knowledge ([link removed])
to impact CF research, care, and programs. Anyone ages 13 and older who has CF or is a family member of a person with CF is invited to contribute their voice to this empowering, virtual opportunity.

Join Community Voice » ([link removed])




People With CF Are Living Longer. What Does That Mean for Our Care?

Last month, we announced the CF community is growing because people with cystic fibrosis are living longer.
But what does this mean for care? ([link removed])
Betsy Sullivan, a 22-year-old with CF asked Dr. Whitney Brown, senior director of clinical affairs, what these numbers might mean for the care people with CF receive.

Read Betsy ([link removed])


([link removed])




WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


([link removed])
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]


www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

Got this as a forward? [Sign up]([link removed]) to receive our future emails.

[Opt out]([link removed]) of this mailing list |
Opt out ([link removed])
of all CFF emails

This email was sent to [email protected].
To continue receiving our emails, add us to your address book.