Journal of Cystic Fibrosis Spotlights the Evolving Cystic Fibrosis Care Model

People with cystic fibrosis are living longer, healthier lives because of highly specialized care and treatments available today, including Trikafta. The Journal of Cystic Fibrosis recently published a commentary reviewing how shifts such as these will affect the CF care model and offers recommendations to improve the quality of care.

Getting Ready for Back to School

Your child may feel uncomfortable if they are among the few wearing masks at school. Remind them that masking helps keep them healthy.

Practice at home: “I am wearing my mask to stop spreading germs,” or “My parents asked me to keep wearing a mask at school.”
Remind the school that a mask protects your child from germs that could make their CF worse.
Recruit teachers, staff, and other students to help others understand why your child needs to take these precautions.

Read more about CF and school »

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Help Shape Research, Care, and CF Programs

Your unique experiences with cystic fibrosis can help make a difference for the CF community. Community Voice provides an opportunity to share personal experiences, perspectives, priorities, and knowledge to impact CF research, care, and programs. Anyone ages 13 and older who has CF or is a family member of a person with CF is invited to contribute their voice to this empowering, virtual opportunity.

Join Community Voice »

People With CF Are Living Longer. What Does That Mean for Our Care?

Last month, we announced the CF community is growing because people with cystic fibrosis are living longer. But what does this mean for care? Betsy Sullivan, a 22-year-old with CF asked Dr. Whitney Brown, senior director of clinical affairs, what these numbers might mean for the care people with CF receive.

Read Betsy's interview with Dr. Brown »

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WE WILL NOT REST UNTIL WE FIND A CURE

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