The latest information for April 21, 2022


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CF Foundation Invests $5 Million for Development of New CFTR Modulators

This week, the Foundation
announced our investment of $5 million in Sionna Therapeutics ([link removed])
to develop new cystic fibrosis transmembrane conductance regulator (CFTR) modulators. If successful, these potential CFTR modulators could provide potentially more effective treatments, as well as alternative treatment options for people with the most common CF mutation, F508del, including those who can’t tolerate existing modulators.

Read the announcement » ([link removed])


Masking in School

Masking has been shown to effectively reduce the spread of illness, including COVID-19. But some schools and families may approach how to mask differently than you. If you or your child with cystic fibrosis need tips to help feel comfortable masking at school, explore our guide:
COVID-19: Returning to School ([link removed]).

Download the guide » ([link removed])


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Navigating CF Now Available on YouTube

Getting denied for a cystic fibrosis treatment or service by your health insurance plan can be overwhelming. But there are steps you can take to have your claim reconsidered through the appeals process. Whether you or a loved one is newly diagnosed with CF, going through the transplant journey, or somewhere in between,
watch the Navigating CF video series ([link removed])
to understand the basics of insurance appeals, and how you and your doctor can navigate a successful appeal depending on the type of insurance you have.

Watch Navigating CF » ([link removed])


New Blog: The Best Reluctant Decision I Ever Made


Kasey Raffensperger, an adult living with cystic fibrosis ([link removed]), resisted the idea of getting a double-lung transplant. Today, nearly six-years post-transplant, she shares why she’s glad she had a change of heart and the importance of organ donation.

Read Kasey ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


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