CF Foundation Invests $5 Million for Development of New CFTR Modulators
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This week, the Foundation announced our investment of $5 million in Sionna Therapeutics to develop new cystic fibrosis transmembrane conductance regulator (CFTR) modulators. If successful, these potential CFTR modulators could provide potentially more effective treatments, as well as alternative treatment options for people with the most common CF mutation, F508del, including those who can’t tolerate existing modulators.
Read the announcement »
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Masking has been shown to effectively reduce the spread of illness, including COVID-19. But some schools and families may approach how to mask differently than you. If you or your child with cystic fibrosis need tips to help feel comfortable masking at school, explore our guide: COVID-19: Returning to School.
Download the guide »
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Navigating CF Now Available on YouTube
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Getting denied for a cystic fibrosis treatment or service by your health insurance plan can be overwhelming. But there are steps you can take to have your claim reconsidered through the appeals process. Whether you or a loved one is newly diagnosed with CF, going through the transplant journey, or somewhere in between, watch the Navigating CF video series to understand the basics of insurance appeals, and how you and your doctor can navigate a successful appeal depending on the type of insurance you have.
Watch Navigating CF »
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New Blog: The Best Reluctant Decision I Ever Made
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