Precision medicine & equity; dementia decisions; legal & nursing honors

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** Apri 6, 2022
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** Love and Loss with Amy Bloom
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** Virtual Event on April 14
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Bestselling author Amy Bloom’s world was altered forever when an MRI indicated that her husband Brian had Alzheimer’s disease. Together, led by Brian, Brian and Amy made the decision to travel to Switzerland to access an assisted dying process unavailable in the United States. In this (rescheduled) discussion with Hastings Center President Mildred Solomon on April 14, Bloom will talk about her new book, In Love: A Memoir of Love and Loss, including how she and her husband approached his diagnosis and this decision. Learn more and register ([link removed]) .

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** Aiming for Greater Diversity in Newborn Sequencing
Hope for Early Detection of Rare Diseases
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A major new study designed to measure the utility of routine genome sequencing of newborns to identify rare diseases aims for greater diversity than an earlier trial, which consisted mainly of infants of European ancestry. Hastings Center director of research research
Josephine Johnston sees promise in the new study’s focus on community pediatric clinics, she told GenomeWeb, because of its potential to increase participation and identify benefit to primary pediatric care. Read the GenomeWeb article ([link removed]) .

Is universal newborn sequencing ethical? A Hastings Center special report, co-edited by Johnston, recommended against it until the benefits are proven. Read “The Ethics of Sequencing Newborns: Reflections and Recommendations.” ([link removed])

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** MAID Without Borders, Mask Madness
From Hastings Bioethics Forum
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Oregon, the first state to legalize medical-aid-in-dying (MAID), just became the first state to drop the requirement that had limited MAID access to state residents. Hastings Center research scholar Nancy Berlinger discusses some ethical and social implications of this policy change. Read “MAID Without Borders? Oregon Drops the Residency Requirement.” ([link removed])

As mask mandates are rolled back and friends and neighbors debate the risks and benefits of masks and mask mandates, Hastings Center research scholar Gregory Kaebnick sees a useful lesson for democracy. Read “Masks, Values, and a Lesson for Democracy?” ([link removed])

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** "A Stalwart of Elderly Ecoterrorists"
Challenging Ageist Stereotypes
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In a near future imagined by Joy Williams in her recent novel, Harrow, Earth is in full-on climate collapse and "the elderly are among the few remaining revolutionaries," writes Liz Bowen, The Hastings Center's Rice Family Fellow in Bioethics and the Humanities, in a review. Read the review ([link removed]) .


** Upcoming Events
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"Love and Loss with Amy Bloom." A talk with the author about her new book, In Love: A Memoir of Love and Loss. April 14 ([link removed])

"Is It Possible to Have Healthy People on a Sick Planet?" Gary Cohen will present the Callahan Annual Lecture, April 19 ([link removed]) .

"Ethical Issues We Have Faced Over the Pandemic and Lessons Learned." A talk by Hastings Center President Mildred Solomon at Yale.May 11 ([link removed]) .

VIEW EVENTS ([link removed])
The Hastings Center seeks to ensure responsible health and science policy and practice. We work to secure the wisest possible use of emerging technologies and fair, compassionate, and just health care for people across their lifespan.

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