| | Thursday, February 10, 2022
| |
People with cystic fibrosis, their family members, and caregivers age 16 and older are invited to join us February 24 for NextBreath, a free, online event. Find support and make meaningful connections through relaxed, small group discussions about life with advanced CF lung disease, considering a transplant, preparing for a transplant, and life post-transplant with people who are going through a similar experience.
| |
| Participate in a Focus Group About Home IV Use
| |
Have you or a loved one with cystic fibrosis used home IVs? Researchers from the CF Therapeutic Development Network are conducting a series of focus groups for people with CF and their caregivers to design a novel intervention to improve home treatment of pulmonary exacerbations requiring intravenous antibiotics. Join Community Voice today to be considered to participate in these focus groups.
| |
| We Want to Hear Your Infection Story
| |
Last month the Foundation announced that we exceeded our $100 million commitment to infection research – but we are far from finished in our fight against antibiotic-resistant infections. How can you help? Share how antibiotic-resistant infections have affected your life to help demonstrate the impact of this issue as the Foundation continues to advocate for the PASTEUR act.
| |
| Why Sharing My Positive COVID Results Mattered
| |
|
Test positive for COVID-19? Tell your cystic fibrosis care team. Carmelina Hreinsson, an adult with CF, shares her experience after receiving a positive COVID test, and how she worked with her care team to get an important drug to help reduce the risk of severe symptoms.
| |
|
|
|
|
