| | Thursday, January 27, 2022
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| Steven Rowe, MD, Announced as Chief Scientific Officer
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Yesterday, we announced Steven Rowe, MD, will be the Foundation's next scientific officer. His more than two decades of work in cystic fibrosis and experience contributing to research in personalized medicine and identifying compounds to restore the function of nonsense mutations make Dr. Rowe distinctly suited to lead our scientific strategy as we pursue a cure for all people with CF. He will join the Foundation as CSO starting July 1.
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| 2020 Patient Registry Handout: CF Care and COVID
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Throughout 2020, people with cystic fibrosis managed their health amid disruptions to daily life caused by the COVID-19 pandemic. Data captured in the CF Foundation's Patient Registry show remarkable trends in the health of people with CF and the care they received in partnership with their CF care teams – a testament to the strength and resilience of the CF community.
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| Compass Officially Accredited by Alliance of Information and Referral Systems
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Compass received their official accreditation from the Alliance of Information and Referral Systems (AIRS), the only source globally that sets standards, accreditation, and certification for community referral and information services. The accreditation solidifies Compass's premier quality and effectiveness as an information and referral source for our community.
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| Watch Genetic Therapies 101 on YouTube
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| Giving You Permission to Accept My Chronic Illness
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As a person with cystic fibrosis, Luisa Palazola has spent a lot of time wondering: What's wrong with being sick? On the CF Community Blog, she shares that while she doesn't consider having a chronic illness like cystic fibrosis to be a good thing, she accepts it – and thinks others should, too.
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