Over the past year, Devina, and her husband, Austin, have done just that.
They navigated through Baylor's meconium ileus blockage in the days following her birth, getting a feeding tube placed after she struggled to gain weight, and starting inhaled antibiotics after she cultured pseudomonas.
It's not how any parent expects the first year of their child's life to go.
"We managed each hurdle because of the support from the CF community," said Devina. "We managed because we have a team of doctors and clinical staff working their hardest to do what they can for her. We managed because we have a village behind us."
In the future, Devina hopes Baylor will participate in clinical trials to help move us closer to a cure for cystic fibrosis. But for now, her dreams for her daughter are simple: to create special memories with her big sister and live her life to the fullest.
We are dedicated to ensuring that everyone with cystic fibrosis, like Baylor, has the chance to live a long, healthy life, free from the burden of this disease. We will not leave anyone behind.
This holiday season, help us advance research so people with CF have the chance to chase their dreams. Make your gift today.
