The latest information for September 2, 2021
The latest information for September 2, 2021
Together Communtiy Update

Thursday, September 2, 2021

Dr. Boyle Discusses Antimicrobial Resistance at World Orphan Drug Congress

Last week, Michael Boyle, MD, president and CEO of the Cystic Fibrosis Foundation, discussed at a virtual fireside chat at the World Orphan Drug Congress the impact antimicrobial resistance has on rare disease communities such as CF. "This is a foreseeable crisis," he said. "Our best defense is to be prepared."

Celebrate National Grandparents' Day

Grandparents play an important role in the lives of people with cystic fibrosis, and we can't wait to celebrate National Grandparents' Day September 12! No matter where you live, join us at a virtual event celebration this month to connect and share stories with other grandparents and grandpersons.
Find an event »

New on YouTube: Research Overview –  Cystic Fibrosis Sinus Disease

Management of complications secondary to CF, such as sinus disease, is important for maintaining an individual's health and quality of life. In our latest research webinar, CF researchers Daniel Beswick, MD, and Anna Zemke, MD, PhD, alongside Eliza Callard, an adult with cystic fibrosis, discuss new research on this important topic including studies looking at the impact of highly effective modulators on sinus disease and sinus surgery outcomes.
Watch the recording »

My Journey to a Second Lung Transplant

In October 2020, Kadeem Morgan began to say his final goodbyes, as his doctors did not think he was strong enough for a second lung transplant. But with constant physical therapy, two months later he was placed on the list, and soon received a call for new lungs. On the CF Community Blog, Kadeem shares his journey to his second transplant, and the lesson he learned along the way.
  We will not rest until we find a cure  
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