The latest information for April 1, 2021
The latest information for April 1, 2021
Together Communtiy Update

Thursday, April 1, 2021

William Skach, Chief Scientific Officer, to Retire From the CF Foundation

William Skach, MD, will retire from the CF Foundation this summer. Under his leadership, the Foundation significantly strengthened and deepened its scientific programs – adding best-in-class expertise in regulatory affairs, genetic research, and infection.
Read the announcement »

The Latest in CF Research

The Foundation awarded up to $400,000 to Life Edit Therapeutics to explore the application of their unique gene editing technology in cystic fibrosis. The funding will enable the company to screen their library of editing tools for options that may correct the six most common nonsense mutations in people with CF.
Read more about the award »

Register Today for Supporting Your Adolescent's Mental Health During the Pandemic: A Conversation for Parents 

Talking to your child about their emotional well-being can be tough – but you're not alone. Join us for a discussion on teenage emotional well-being and to have your top questions about mental health answered by a panel of experts. This event is intended for parents and caregivers of older children and teens. Please note, this event will include mentions of mental health conditions such as depression, anxiety, and suicidal thoughts. Viewer discretion is advised.
RSVP »

Register for ResearchCon

You're invited to join us April 15 and 17 for ResearchCon, a free, online educational event. Researchers, clinicians, and CF community members will share the latest CF research on topics including the impact of COVID-19 and telehealth, GI and the endocrine system, disparities in CF care and experiences among people of color and LGBTQ+, and more.

How I Got My Son to See the Importance of Taking His CF Medications

At first, Lathronia Jefferson, a mom to a 9-year-old living with cystic fibrosis, didn't have any issues getting her son to do his treatments. But as he got older, he began to hide his pills instead of taking them. On the CF Community Blog, Lathronia shares how she helped him understand the importance of taking his medications.
Read the blog »
  We will not rest until we find a cure  
Opt-out of this mailing list
Opt-out of all CFF emails