| Thursday, January 7, 2021
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Register for the COVID-19 Vaccines Community Town Hall
While the U.S. FDA emergency use authorization of the COVID-19 vaccines marks an important milestone of the pandemic, it also raises many questions for people with cystic fibrosis and their loved ones. Register to join us Thursday, January 14 at 7 p.m. ET to have your top questions about the vaccines answered in a community town hall led by a panel of experts.
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CF Foundation Strongly Supports COVID-19 Vaccine Recommendations for People Living with Cystic Fibrosis
Today, the CF Foundation issued a statement supporting public health authorities’ recommendations for COVID-19 vaccines and strongly encouraging people with cystic fibrosis to talk with their CF care team about getting vaccinated. We also continue to advocate for priority access to COVID-19 vaccines for all people living with CF and are closely monitoring the scientific developments for the FDA approved vaccines to understand how they may affect the CF community.
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Register for our National Annual Meeting
Join us Thursday, January 28 at 8 p.m. ET for the CF Foundation’s first National Annual Meeting during which we will celebrate our volunteers, highlight progress in research and care, and discuss our vision for the year ahead. Marc Ginsky, chief operating officer; Bruce Marshall, MD, EVP and chief medical officer; Bill Skach, MD, EVP and chief scientific officer; and Michael Boyle, MD, president and CEO, will share updates and answer questions from the community.
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FDA Approves Expansion of Modulators for People with Certain Rare Mutations
The U.S. FDA expanded its approval of three CFTR modulators to include additional people with cystic fibrosis who have certain rare mutations. The approval enables more than 600 individuals, who were not previously eligible for modulators to access drugs that treat the underlying cause of their disease for the first time. It also provides some people with CF additional therapeutic options.
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Dancing the Frenetic Routine of a Mom to a Child with CFWhen you have a child living with cystic fibrosis, your mornings become a tightly choreographed routine of treatments and getting ready for work and school. Add sickness to it, and the routine becomes more complex and the pace more frenetic. Rebekah Brooks, whose daughter has CF, writes about how she manages the stress and uncertainty that come with caring for a child with CF.
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