| Thursday, November 19, 2020
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Global Study on COVID-19 in People with CF Publishes Updated Outcomes
Updated outcomes from 181 people with cystic fibrosis from 19 countries diagnosed with COVID-19 have been published in the Journal of CF as part of an ongoing, international collaboration to understand the impact of COVID-19 on people with CF. Consistent with previously reported data, individuals represented in the study exhibited a range of outcomes. Overall, we continue to be encouraged that people with CF are faring better than initially expected and that many patients have been able to manage their treatment at home. However, the study confirmed that COVID-19 can cause serious illness in people with CF.
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Sexual and Reproductive Health Webinar Recording Now AvailableThe recording from our sexual and reproductive health webinar is now available. Hear about current and upcoming research to address the unique needs of people with cystic fibrosis including studies on pregnancy, parenthood, and care delivery. In addition, hear from members of the Therapeutics Development Network Women’s Health Research Working Group, who are moving important research forward.
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Planning for a Future I Never Thought I’d Have With CF
Diagnosed as an infant with cystic fibrosis, Sarah Boylan's doctors estimated her life expectancy to be in the teens. But after starting Kalydeco® in her early 20s, her mindset changed to incorporate and invest in an expanding future.
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