Stay connected with the latest stories from the CF community


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December 2025



CF Foundation Community Blog Digest


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Our Experience With Trikafta and Mental Health

By Sarah Logan, a parent of a child with CF

"Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter's birth -- which made it all the more devastating when she had to stop taking Trikafta due to its impact on her mental health."

Read Sarah ([link removed])




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DIAGNOSIS

How Chronic Pancreatitis Led to My Diagnosis

By Tom Worth, an adult with CF

"Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn't until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: cystic fibrosis."

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TRAVEL

7 Tips for Traveling Internationally With CF

By Hannah Schau, an adult with CF

"Traveling has been a lifelong passion, and I won't let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF."

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WELLNESS

Reclaiming My Life After Substance Misuse

By Taelor Thornton, an adult with CF

"Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I'm grateful to be on the other side, and am able to care for myself with clarity, strength, and hope."

Read Taelor ([link removed])





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