Stay connected with the latest stories from the CF community
CF Foundation Community Blog Digest
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Our Experience With Trikafta and Mental Health
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By Sarah Logan, a parent of a child with CF
“Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on her mental health.”
Read Sarah's story >>
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| How Chronic Pancreatitis Led to My Diagnosis
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By Tom Worth, an adult with CF
“Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: cystic fibrosis.”
Read Tom's story >>
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7 Tips for Traveling Internationally With CF
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By Hannah Schau, an adult with CF
“Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.”
Read Hannah's story >>
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Reclaiming My Life After Substance Misuse
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By Taelor Thornton, an adult with CF
“Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am able to care for myself with clarity, strength, and hope.”
Read Taelor's story >>
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