Read our top policy priorities for 2025


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# April 17, 2025



CF Foundation Outlines Its Policy Priorities to Congress and the Administration

In recent letters to Congress and the Administration,
we outlined our top policy priorities ([link removed])
for the cystic fibrosis community and urged policymakers to take the needs of people with CF into account when considering new health care proposals. Our key asks include full funding for the NIH and FDA, increasing access to adequate, affordable care, pharmacy benefit manager (PBM) reform, action on antimicrobial resistance, and expanded telehealth access.


Get familiar with our 2025 policy priorities » ([link removed])


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Explore Your Curiosity at ResearchCon

Do you have questions about the latest advancements in cystic fibrosis care and research?
Join us at ResearchCon May 6 ([link removed])
to explore critical research topics and engage with the whole CF community. ResearchCon is a one-day event for everyone with a personal or professional connection to cystic fibrosis to learn and discuss the latest in CF-related science, research, clinical care, and the lived experience alongside others living with and studying the disease.

Register now » ([link removed])


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Go the Distance With the Breathe Team

Run with us to
help cure cystic fibrosis as a member of the Breathe Team ([link removed])! From New York City to Honolulu, and Berlin to Tokyo, joining the Breathe Team is an incredible way to raise funds and awareness for CF while experiencing beautiful scenery and iconic landmarks. Whether you're an elite runner looking to set new records or simply looking for a new challenge, we have a race for you. Bibs are limited -- learn more about applying today.

Run with us » ([link removed])


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April is Donate Life Month

April is National Donate Life Month, a time to increase awareness about organ donation,
register as an organ donor ([link removed]), and honor those who have saved lives through the gift of donation. Many people with CF face the possibility of a lung or liver transplant. Learn more about how you can help people who are waiting for a lifesaving transplant by registering as an organ, eye, and tissue donor.

Become an organ donor » ([link removed])


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From the CF Community Blog: Navigating the Realities of Adult Life With CF

When Patrick Brown was first diagnosed with cystic fibrosis, doctors didn't expect him to live past the age of 8, but
Trikafta opened the door to a future he never imagined ([link removed]). Since then, he's built a new life and learned to embrace the challenges that come with adulthood.

Read Patrick ([link removed])


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