April 17, 2025

CF Foundation Outlines Its Policy Priorities to Congress and the Administration  

In recent letters to Congress and the Administration, we outlined our top policy priorities for the cystic fibrosis community and urged policymakers to take the needs of people with CF into account when considering new health care proposals. Our key asks include full funding for the NIH and FDA, increasing access to adequate, affordable care, pharmacy benefit manager (PBM) reform, action on antimicrobial resistance, and expanded telehealth access.      

Get familiar with our 2025 policy priorities »

Explore Your Curiosity at ResearchCon  

Do you have questions about the latest advancements in cystic fibrosis care and research? Join us at ResearchCon May 6 to explore critical research topics and engage with the whole CF community. ResearchCon is a one-day event for everyone with a personal or professional connection to cystic fibrosis to learn and discuss the latest in CF-related science, research, clinical care, and the lived experience alongside others living with and studying the disease. 

Register now »

Go the Distance With the Breathe Team 

Run with us to help cure cystic fibrosis as a member of the Breathe Team! From New York City to Honolulu, and Berlin to Tokyo, joining the Breathe Team is an incredible way to raise funds and awareness for CF while experiencing beautiful scenery and iconic landmarks. Whether you’re an elite runner looking to set new records or simply looking for a new challenge, we have a race for you. Bibs are limited — learn more about applying today. 

Run with us »

April is Donate Life Month

April is National Donate Life Month, a time to increase awareness about organ donation, register as an organ donor, and honor those who have saved lives through the gift of donation. Many people with CF face the possibility of a lung or liver transplant. Learn more about how you can help people who are waiting for a lifesaving transplant by registering as an organ, eye, and tissue donor.

Become an organ donor »

From the CF Community Blog: Navigating the Realities of Adult Life With CF

When Patrick Brown was first diagnosed with cystic fibrosis, doctors didn’t expect him to live past the age of 8, but Trikafta opened the door to a future he never imagined. Since then, he's built a new life and learned to embrace the challenges that come with adulthood.

Read Patrick's story »