International journal publishes newborn screening recommendations


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# April 3, 2025



International Journal Publishes Cystic Fibrosis Newborn Screening Recommendations

We celebrate the publication of
recommendations to improve newborn screening for cystic fibrosis across the United States ([link removed]). The recommendations represent a significant milestone of the Foundation's Newborn Screening Initiative, a multi-year effort to advance CF newborn screening and achieve better health outcomes for all babies born with CF.


See the recommendations » ([link removed])


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CF Foundation Responds to Mass Reduction in Force Across the NIH and FDA

This week, the U.S. Department of Health and Human Services began drastically reducing its workforce across all of its agencies, including the FDA, NIH, CDC, and CMS.
The Cystic Fibrosis Foundation issued a statement ([link removed])
urging HHS to avoid sudden and sweeping cuts that eliminate essential agency expertise, citing the devastating impact on medical research and development of transformative treatments and a cure for CF.

Learn how these cuts impact our work » ([link removed])


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CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections

The Cystic Fibrosis Foundation has agreed to
invest up to $2.3 million in Owlstone Medical ([link removed])
to fund the development of a breath test designed to detect and monitor Pseudomonas infections in people with CF.

Read the announcement » ([link removed])


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Share Your Experiences in a Supportive Environment Through CF Circles

Connect virtually with adults who understand the ups and downs of life with cystic fibrosis through
CF Circles ([link removed]). These topic-based, small-group discussions offer a space to share experiences and make connections with people who can relate to what you're going through. Explore our upcoming sessions:

* April 15:
Life as a Black Person With CF » ([link removed])

* May 13:
Life Post-Lung Transplant » ([link removed])

* June 10:
Life Without CFTR Modulators » ([link removed])



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Genetic Therapies Webinar Now on YouTube

In case you missed it, the recording from our
genetic therapies research webinar is now available on YouTube ([link removed]). During the webinar, Kara Foshay, PhD, and Heather Hathorne, PhD, RRT, CCRC, share an overview of genetic therapies, starting from the basics. Additionally, we will cover
the same content in a Spanish webinar on April 10 ([link removed])
-- we encourage you to share this event with anyone who might find it valuable.

Watch the recording » ([link removed])


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