April 3, 2025

International Journal Publishes Cystic Fibrosis Newborn Screening Recommendations  

We celebrate the publication of recommendations to improve newborn screening for cystic fibrosis across the United States. The recommendations represent a significant milestone of the Foundation’s Newborn Screening Initiative, a multi-year effort to advance CF newborn screening and achieve better health outcomes for all babies born with CF.    

See the recommendations »

CF Foundation Responds to Mass Reduction in Force Across the NIH and FDA 

This week, the U.S. Department of Health and Human Services began drastically reducing its workforce across all of its agencies, including the FDA, NIH, CDC, and CMS. The Cystic Fibrosis Foundation issued a statement urging HHS to avoid sudden and sweeping cuts that eliminate essential agency expertise, citing the devastating impact on medical research and development of transformative treatments and a cure for CF.

Learn how these cuts impact our work »

CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections 

The Cystic Fibrosis Foundation has agreed to invest up to $2.3 million in Owlstone Medical to fund the development of a breath test designed to detect and monitor Pseudomonas infections in people with CF. 

Read the announcement »

Share Your Experiences in a Supportive Environment Through CF Circles 

Connect virtually with adults who understand the ups and downs of life with cystic fibrosis through CF Circles. These topic-based, small-group discussions offer a space to share experiences and make connections with people who can relate to what you’re going through. Explore our upcoming sessions:  

• April 15: Life as a Black Person With CF »

• May 13: Life Post-Lung Transplant »

• June 10: Life Without CFTR Modulators »

Genetic Therapies Webinar Now on YouTube

In case you missed it, the recording from our genetic therapies research webinar is now available on YouTube. During the webinar, Kara Foshay, PhD, and Heather Hathorne, PhD, RRT, CCRC, share an overview of genetic therapies, starting from the basics. Additionally, we will cover the same content in a Spanish webinar on April 10 — we encourage you to share this event with anyone who might find it valuable.

Watch the recording »