Get to know our new National Volunteer Advocacy Committee co-chairs
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# March 20, 2025
Meet Our New National Volunteer Advocacy Committee Co-Chairs
Kirk Astroth, an adult with cystic fibrosis, and Brittney Householder, a godmother to a teen with CF, will lead our volunteer advocacy efforts as
our new National Volunteer Advocacy Committee co-chairs ([link removed]). As we push forward with new therapies and advancements in CF care, advocacy remains essential to ensuring access and affordability. We thank Marissa Benchea, an adult with CF, and Jeremy and Rachel Olimb, parents of children with CF, for their leadership as co-chairs since 2022.
Get to know our new co-chairs » ([link removed])
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REACH Study: Be Part of the Future of Cystic Fibrosis Treatments
Are you living with cystic fibrosis but not on CFTR modulators?
The REACH study is actively enrolling participants like you ([link removed])
to share health info and blood samples. By participating, you can help shape the future of CF treatment for those who don't respond to current therapies.
Join the study » ([link removed])
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Grow Your Professional Skills and Network
Join young professionals from across the country March 24 at 8 p.m. ET ([link removed])
for our Tomorrow's Leaders professional development series. This virtual event will spotlight the inspiring stories of women who demonstrated resilience, strength, and success in the face of personal and professional challenges. Register today to hear valuable insights and learn strategies for navigating your path to achievement.
Save your spot » ([link removed])
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From the CF Community Blog: Gratitude and Guilt With CF
Ryleigh Webster had never struggled with her identity with cystic fibrosis until taking Trikafta.
Her evolving relationship with CF ([link removed])
brought feelings of guilt and jealousy but also a deep sense of gratitude and understanding.
Read Ryleigh ([link removed])
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