March 20, 2025

Meet Our New National Volunteer Advocacy Committee Co-Chairs   

Kirk Astroth, an adult with cystic fibrosis, and Brittney Householder, a godmother to a teen with CF, will lead our volunteer advocacy efforts as our new National Volunteer Advocacy Committee co-chairs. As we push forward with new therapies and advancements in CF care, advocacy remains essential to ensuring access and affordability. We thank Marissa Benchea, an adult with CF, and Jeremy and Rachel Olimb, parents of children with CF, for their leadership as co-chairs since 2022.  

Get to know our new co-chairs »

REACH Study: Be Part of the Future of Cystic Fibrosis Treatments 

Are you living with cystic fibrosis but not on CFTR modulators? The REACH study is actively enrolling participants like you to share health info and blood samples. By participating, you can help shape the future of CF treatment for those who don't respond to current therapies.

Join the study »

Grow Your Professional Skills and Network

Join young professionals from across the country March 24 at 8 p.m. ET for our Tomorrow's Leaders professional development series. This virtual event will spotlight the inspiring stories of women who demonstrated resilience, strength, and success in the face of personal and professional challenges. Register today to hear valuable insights and learn strategies for navigating your path to achievement.

Save your spot »

From the CF Community Blog: Gratitude and Guilt With CF

Ryleigh Webster had never struggled with her identity with cystic fibrosis until taking Trikafta. Her evolving relationship with CF brought feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Read Ryleigh's story »