Our priorities from today on


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As Washington and state governments prepare for leadership changes in January, the Cystic Fibrosis Foundation remains guided by one principle: ensuring that people with CF have the opportunity to live long, fulfilling lives. We continue to engage and educate policymakers on the complex needs of people with CF and support policies to advance promising therapeutic approaches in the drug development pipeline and to protect access to high-quality cystic fibrosis care.



# End-of-Year Advocacy Efforts

The Foundation is pushing to ensure our priorities are included on Congress's short but important to-do list as the legislative year draws to a close. They include:

* Supporting the
PASTEUR Act ([link removed]), a critical bill to boost antibiotic innovation. We're advocating for an "authorization only" approach now to establish this new program, with funding to follow in the future. You can help:
Urge your members of Congress to pass PASTEUR ([link removed]).
* Passing
Pharmacy Benefits Manager (PBM) reform ([link removed])
and keeping the patient voice at the center of discussions. We're advocating for legislation like
the Modernizing and Ensuring PBM Accountability Act ([link removed]), which the Foundation helped shape and support. This bill increases transparency, holds PBMs accountable, and addresses other factors driving high drug costs facing patients.
* Laying the groundwork to
ban copay accumulator programs ([link removed]). We are working with the Administration and await the release of an administrative rule that is expected to significantly lower the cost of the
HELP Copays Act ([link removed])
when it is reintroduced in the next Congress.





# 2025 Policy Priorities

The Foundation will continue to focus on ensuring timely, affordable access to care and treatments for people with CF in the new year. Many of our priorities have bipartisan support, including creating incentives to develop antimicrobial therapies, reforming pharmacy benefit manager practices, and ensuring access to telehealth services. Efforts to ban copay accumulator and maximizer programs, prescription drug affordability boards, and reforming prior authorization will likely stay on state legislative agendas. Looking ahead, these policy priorities will be key to advancing our mission:

* Protecting access to adequate and affordable coverage: The Foundation supports policies and programs -- such as the Affordable Care Act and Medicaid access -- that promote and enhance adequate, affordable health coverage necessary for the CF community. We will continue emphasizing the critical nature of these programs to decision-makers as new health care proposals are introduced.
* Supporting key federal agencies: Strong funding for the NIH, CDC, and FDA is essential to advancing CF research and drug development. We'll keep advocating for the resources these agencies need to continue their vital work.





# Our Commitment to You

The Foundation is a leader among patient advocacy organizations due to the decades of partnering with the community to articulate the needs of people with CF. Together, we will keep advocating to protect access to high-quality care and treatment and supporting innovative approaches to research, drug development, and health care delivery.

We have been successful because of our community's willingness to share powerful stories that demonstrate the human impact policies can have. From letters to your representatives to meeting with members of Congress at home and on Capitol Hill, there are many ways to make your voice heard. If you want to learn more about our efforts or share your story, email [email protected] (mailto:[email protected]).




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