As Washington and state governments prepare for leadership changes in January, the Cystic Fibrosis Foundation remains guided by one principle: ensuring that people with CF have the opportunity to live long, fulfilling lives. We continue to engage and educate policymakers on the complex needs of people with CF and support policies to advance promising therapeutic approaches in the drug development pipeline and to protect access to high-quality cystic fibrosis care.  

The Foundation is pushing to ensure our priorities are included on Congress’s short but important to-do list as the legislative year draws to a close. They include:

The Foundation will continue to focus on ensuring timely, affordable access to care and treatments for people with CF in the new year. Many of our priorities have bipartisan support, including creating incentives to develop antimicrobial therapies, reforming pharmacy benefit manager practices, and ensuring access to telehealth services. Efforts to ban copay accumulator and maximizer programs, prescription drug affordability boards, and reforming prior authorization will likely stay on state legislative agendas. Looking ahead, these policy priorities will be key to advancing our mission:

The Foundation is a leader among patient advocacy organizations due to the decades of partnering with the community to articulate the needs of people with CF. Together, we will keep advocating to protect access to high-quality care and treatment and supporting innovative approaches to research, drug development, and health care delivery.  

We have been successful because of our community's willingness to share powerful stories that demonstrate the human impact policies can have. From letters to your representatives to meeting with members of Congress at home and on Capitol Hill, there are many ways to make your voice heard. If you want to learn more about our efforts or share your story, email [email protected].