Explore Health Trends in Our 2023 Patient Registry Highlights Handout


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# July 25, 2024



Explore Health Trends in Our 2023 Patient Registry Highlights Handout


Our 2023 Patient Registry Highlights Handout is now available ([link removed]). It includes important data on people with cystic fibrosis in the U.S. who participate in the Registry, covering topics such as lung function, lung transplants, bacterial infections, mental health, insurance coverage, employment, and education.

Read the highlights » ([link removed])


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Find Important Information About Lung Transplant Centers

People who are considering a lung transplant or learning how to maintain their health post-transplant can
find important information about transplant centers ([link removed]), including how many transplants each center has performed in the past six years -- overall and for people with cystic fibrosis.

Find a lung transplant center » ([link removed])


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Use Your Voice to Drive Change

Community Voice is an empowering opportunity for people with CF and their families.
As a member, you can make an impact ([link removed])
by bringing your insights and priorities to the forefront of CF research, care, and programs through opportunities like surveys, focus groups, interviews, committees, and more. Join Community Voice today to make your voice heard and inform the next chapter of CF Foundation work.

Join Community Voice » ([link removed])


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Reclaiming My Identity After Starting Trikafta®

Caitlin Coppock, an adult with cystic fibrosis, was initially reluctant to start new medication, but once she began taking Trikafta®, everything changed. On the CF Community Blog,
Caitlin shares how she’s navigating the new challenge of finding her identity after Trikafta ([link removed])
now that she feels a sense of freedom from the constant focus on her health.

Read Caitlin ([link removed])


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