July 25, 2024

Explore Health Trends in Our 2023 Patient Registry Highlights Handout   

Our 2023 Patient Registry Highlights Handout is now available. It includes important data on people with cystic fibrosis in the U.S. who participate in the Registry, covering topics such as lung function, lung transplants, bacterial infections, mental health, insurance coverage, employment, and education.

Read the highlights »

Find Important Information About Lung Transplant Centers

People who are considering a lung transplant or learning how to maintain their health post-transplant can find important information about transplant centers, including how many transplants each center has performed in the past six years — overall and for people with cystic fibrosis.

Find a lung transplant center »

Use Your Voice to Drive Change

Community Voice is an empowering opportunity for people with CF and their families. As a member, you can make an impact by bringing your insights and priorities to the forefront of CF research, care, and programs through opportunities like surveys, focus groups, interviews, committees, and more. Join Community Voice today to make your voice heard and inform the next chapter of CF Foundation work.

Join Community Voice »

Reclaiming My Identity After Starting Trikafta^®

Caitlin Coppock, an adult with cystic fibrosis, was initially reluctant to start new medication, but once she began taking Trikafta^®, everything changed. On the CF Community Blog, Caitlin shares how she’s navigating the new challenge of finding her identity after Trikafta now that she feels a sense of freedom from the constant focus on her health.

Read Caitlin's story »