Tell Lawmakers: Don’t Disqualify People with CF
Many states and health systems are creating guidelines for frontline healthcare workers as they prioritize lifesaving services and equipment during the COVID-19 pandemic. Alarmingly, several states have created regional triage plans that reflect an outdated understanding of cystic fibrosis and run the risk of denying care. We are taking steps to educate policymakers and clinicians. Join us in telling lawmakers: any policy that unfairly disadvantages people with cystic fibrosis is unacceptable.
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Facing the Monster: My COVID-19 Experience
For Robyn Petras, an adult with cystic fibrosis, finding out she had COVID-19 was frightening. Robin was able to get through the illness with the resilience she learned from her brother and from a lifetime of managing CF. Learn about her journey surviving COVID-19 while living with cystic fibrosis.
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Upcoming Virtual Events
Thurs., April 16, 6:30 pm ET – ResearchCon
• Connect with CF experts and community members to discuss the latest research in CFTR science and genetic-based therapies and hear an update on COVID-19 and the CF community from Foundation President and CEO, Dr. Mike Boyle.
Register now »
Weds., April 22, 7:00 pm ET – Gratitude Hour
• Join the CF community as we come together to share the thanks during National Volunteer Week. Hear from adults with cystic fibrosis, family members and care team members on what they're thankful for, and share your gratitude with all that are helping make CF stand for cure found.
Register now »
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