From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date May 30, 2024 8:22 PM
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# May 30, 2024



Our 2023 Annual Report Is Here

In 2023, the Foundation celebrated continued achievements and milestones toward our mission of curing cystic fibrosis. We funded more than $286 million in research and care, began trials of multiple types of genetic therapies, and fielded more than 7,000 messages from the CF community about navigating insurance, accessing medications, and handling other issues.
Explore our annual report ([link removed])
to learn how together we're transforming what it means to live with CF.

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The New York Times Spotlights Inequities in CF Newborn Screening

This week, two moms of children with cystic fibrosis, Rena Barrow-Wells and Cambrey White, were featured in The New York Times.
Rena and Cambrey share their challenges in getting their children diagnosed with CF ([link removed])
in an article that highlights how people of color are less likely to be diagnosed early with CF and how we're working to improve newborn screening processes nationwide.

Read the article » ([link removed])


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Storytelling as a Path to Change

As an author and activist,
Cindy Baldwin is deeply passionate about both storytelling and advocacy ([link removed]). On the CF Community Blog, she shares how these two forces combine and become a transformative tool for enacting meaningful change.

Read Cindy ([link removed])


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ResearchCon Recordings Now Available

In case you missed it, the recordings from this year's ResearchCon are
now available on YouTube in English ([link removed])
and
Spanish ([link removed]). Watch now to hear the latest in CF-related science, research, clinical care, and lived experience.

Watch on YouTube » ([link removed])


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