May 30, 2024

Our 2023 Annual Report Is Here 

In 2023, the Foundation celebrated continued achievements and milestones toward our mission of curing cystic fibrosis. We funded more than $286 million in research and care, began trials of multiple types of genetic therapies, and fielded more than 7,000 messages from the CF community about navigating insurance, accessing medications, and handling other issues. Explore our annual report to learn how together we’re transforming what it means to live with CF.

See our annual report »

The New York Times Spotlights Inequities in CF Newborn Screening

This week, two moms of children with cystic fibrosis, Rena Barrow-Wells and Cambrey White, were featured in The New York Times. Rena and Cambrey share their challenges in getting their children diagnosed with CF in an article that highlights how people of color are less likely to be diagnosed early with CF and how we’re working to improve newborn screening processes nationwide. 

Read the article »

Storytelling as a Path to Change

As an author and activist, Cindy Baldwin is deeply passionate about both storytelling and advocacy. On the CF Community Blog, she shares how these two forces combine and become a transformative tool for enacting meaningful change.

Read Cindy's story »

ResearchCon Recordings Now Available 

In case you missed it, the recordings from this year’s ResearchCon are now available on YouTube in English and Spanish. Watch now to hear the latest in CF-related science, research, clinical care, and lived experience. 

Watch on YouTube »