December 14, 2023

Prescription Drug Affordability Boards and Cystic Fibrosis: What You Need to Know

State affordability boards are becoming more prevalent as a way to assess and address the cost and affordability of prescription drugs. Preserving access to care and treatments for people with cystic fibrosis remains the Foundation’s top priority, and we will continue encouraging boards to center their reviews around the needs of people with CF.

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Enroll in a Genetic Therapy Clinical Trial 

Genetic therapies could potentially benefit everyone with cystic fibrosis, regardless of their individual mutations. By participating in a clinical trial, you will be blazing a trail to new therapies and, ultimately, a cure. Explore our clinical trial finder to enroll in an open trial and learn more about what is currently in development. 

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Stay Protected Against Illness This Holiday Season

Respiratory illnesses, including flu and COVID-19, are increasing in the U.S., and both pose serious risks for people with cystic fibrosis. Vaccines are the best way to protect your health this holiday season. 

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NACFC Highlights Webinar Now Available on YouTube

In case you missed it, the recording from our NACFC highlights webinar with CF research experts is now available to watch on YouTube. During the webinar, Drs. Anna Georgiopoulos and Traci Kazmerski shared some of the research and care highlights from the conference including information on mental health, genetic therapies, sexual and reproductive health, and lung transplant.

Watch the recording »