Inaugural Golden Ticket Winner to Receive Additional Funding

Last July, Nosis Bio won the Foundation’s inaugural Golden Ticket competition. A year later, we recently announced that we’ll be investing up to $2 million with them to explore safely delivering gene therapies into the lung, a key challenge in cystic fibrosis.

Get Ready for Back to School

Some germs can be particularly dangerous for people with cystic fibrosis. Your child can reduce the risk of getting sick at school by staying informed about how germs are spread. While informing your child's school about their CF is a personal choice, it can make it easier for staff to help your child reduce the risk of getting and spreading germs.

Learn more »

A light-skinned school-aged boy stands with his arms crossed.

Compass Can Help Navigate Life’s Challenges

Open enrollment is just around the corner! Connect one-on-one with a Compass case manager to ask questions and navigate challenges such as troubleshooting insurance coverage issues, understanding insurance basics, seeking financial assistance for medical care, and much more.

Connect with Compass »

I’m 24 and I have CF — and Bone Disease

Osteopenia is a condition that occurs when the body doesn’t make new bone as quickly as it reabsorbs old bone, causing bones to get weaker and more brittle. During a routine check-up, Lin Marando, an adult with cystic fibrosis, was surprised to receive an osteopenia diagnosis at 24 years old. Lin is determined to take care of her health and try to strengthen her bones while finding support in the CF community.

Read Lin's story »

A light-skinned young woman takes a mirror selfie with another light-skinned young woman.

WE WILL NOT REST UNTIL WE FIND A CURE

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