50+ Messages / Page

  David Elin, Cystic Fibrosis Foundation · [email protected]
October 21, 2019 at 3:19 PM

What are you doing Wednesday?

Learn more about our advocacy work to help CF stand for Cure Found Dear Advocate, Ever wonder how your advocacy helps move the needle on research and development? Join us Wednesday, October 23 at 1:00 PM ET for a webinar to learn more about the F…
  Cystic Fibrosis Foundation · [email protected]
October 17, 2019 at 5:00 PM

Hear the latest in CF research and care from NACFC

Check out the schedule and register today Dear Friend. The North American Cystic Fibrosis Conference (NACFC) brings together researchers and health care professionals from across disciplines to discuss the latest developments in cystic fibrosis res…
  Cystic Fibrosis Foundation · [email protected]
October 16, 2019 at 6:13 PM

Tips for open enrollment

Plus the latest research news, getting social without oversharing, and more Navigate Open Enrollment with CompassChoosing the right health insurance plan can be complex, but CF Foundation Compass can help! You can contact a case manager for one-on-…
  Cystic Fibrosis Foundation · [email protected]
September 13, 2019 at 4:17 PM

Get your IPC Passport

Plus BreatheCon, the O'Donnell's family story, and more on lung transplant Register for BreatheCon!Come together with other people living with CF to discuss topics unique to you! BreatheCon is a free, online event just for adults with cystic fibros…
  David Elin - Cystic Fibrosis Foundation · [email protected]
September 9, 2019 at 3:21 PM

Updates and tools to help you advocate

Learn tips and tricks to help you make a difference in the community Dear Advocate, School is back in session and our lawmakers are back to work. Join the Cystic Fibrosis Foundation on Wednesday, September 11 at 1:00 PM ET for a webinar to hear m…
  Cystic Fibrosis Foundation · [email protected]
August 15, 2019 at 8:30 PM

Celebrating 30 years of progress

Plus 2019 Impact Grants, RNA research, and new fundraising tools Thirty Years, a Lifetime of ProgressThirty years ago this month, scientists discovered the gene for cystic fibrosis. The discovery was heralded as one of the most significant genetic …
  Elizabeth Holden - Cystic Fibrosis Foundation · [email protected]
August 1, 2019 at 8:35 PM

Ready for the next step?

Download your Congressional Recess Toolkit today! Dear Advocate, We’re sorry to have missed you at our latest advocacy webinar – but that doesn’t mean you can’t take part in August recess advocacy! Right now, your lawmakers are back in your…
  Elizabeth Holden - Cystic Fibrosis Foundation · [email protected]
July 29, 2019 at 3:14 PM

What are you up to this summer?

Learn how to help advance policies during Congressional recess Dear Advocate, The cystic fibrosis community has been hard at work advocating both on Capitol Hill and at home for the needs of people with CF. Want to learn how to join this strong, …