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March 28, 2023 | 8 am PT / 11 am ET
Register now for the next webinar in the CGS Missing Voices Initiative series, “Feminist Intersections: Reproductive Genome Editing at a Crossroads.” On Tuesday, March 28, Susan Berke Fogel will moderate a conversation featuring Kavita Ramdas, Alana Cattapan, and Amrita Pande on feminist and reproductive justice concerns about reproductive genome editing.
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Genetic Justice from Start to Summit
CGS’ symposium Genetic Justice from Start to Summit drew hundreds of registrants from 26 countries. Organized as a challenge to the Third International Summit on Human Genome Editing, the symposium featured speakers from a range of social justice perspectives: disability rights, reproductive rights and justice, racial justice, environmentalism, and human rights. Watch the panels and read the transcript here.
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Dispatch from the Gene Editing Summit
Katie Hasson, Biopolitical Times | 03.10.2023
The Third International Summit on Human Genome Editing de-emphasized heritable genome editing, focusing more on somatic gene therapies. But events and initiatives organized around the summit by civil society advocates and scholars demonstrate a growing awareness and sense of urgency about the social justice and human rights implications of heritable genome editing.
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The UK Campaign to Legalize Germline Gene Editing
Pete Shanks, Biopolitical Times | 03.05.2023
The UK's fertility agency HFEA is seeking to grab for itself the authority to move forward with heritable genome editing––overriding UK law and widespread global policy agreement.
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On Safety in Engineering Embryos: Engage the Brakes
Pete Shanks, Biopolitical Times | 03.04.2023
Although it is promoted as a way to prevent the births of children with mitochondrial disease, “3-person IVF” or “nuclear genome transfer” does not work as planned. The revelation of its frequent failure is yet another reason to oppose experiments with heritable genome modification.
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It’s Official: No More Crispr Babies—for Now
Grace Browne, Wired | 03.17.2023
A few lines in the closing statement by the organizing committee were the most important thing to come out of the recent gene editing summit. CGS Associate Director Katie Hasson commented, “I think this is an important step back from the brink.”
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Out of jail, is the CRISPR-baby scandal scientist at it again?
Natasha Mitchell, ABC Radio National | 03.17.2023
“You can support the treatment and the benefit of somatic gene therapies––of using this as medicine for distinct patients––while also seeing the real risks to both individuals and society if we start down the path of editing future children and generations,” said CGS Associate Director Katie Hasson.
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Experts weigh medical advances in gene-editing with ethical dilemmas
Rob Stein, NPR | 03.06.2023
“If we were to allow parents to genetically modify their children, we would be creating new groups of people who are different from each other biologically and some would have been modified in ways that are supposed to enhance them,” said CGS Executive Director Marcy Darnovsky.
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HERITABLE GENOME EDITING | EUGENICS
ASSISTED REPRODUCTION | SURROGACY 360
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Human genome editing: ensuring responsible research
Editorial, The Lancet | 03.18.2023
There is broad international agreement that altering embryo DNA for reproductive purposes should remain forbidden. Protecting legitimate genetic research requires dynamic governance that will close loopholes in regulations and establish a global consensus on oversight and regulation.
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Forthcoming genetic therapies raise serious ethical questions, experts warn
Ian Sample and Hannah Devlin, The Guardian | 03.06.2023
Without oversight and regulation, gene editing could fuel a new “techno-eugenics,” if fertility clinics offer packages of IVF, embryo screening, and gene editing that pressure prospective parents into risky interventions to create the “best” child.
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The American Society of Human Genetics Struggles to Face Its Past
Robert Resta and Diane B. Paul, The DNA Exchange | 02.15.2023
There is much to be admired in ASHG’s willingness to acknowledge the roles the organization and its leadership played in respect both to eugenics and social injustice generally, but its report’s account of the history of eugenics has notable flaws.
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The commercial surrogacy industry is booming as demand for babies rises
Karen Gilchrist, CNBC | 03.07.2023
With more intended parents interested in surrogacy––largely from wealthier Western countries––comes more demand for surrogates. Women in countries including Georgia and Mexico are drawn to surrogacy because of the financial compensation, but risks of exploitation remain, particularly in a largely unregulated industry.
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