From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date March 16, 2023 8:25 PM
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The latest updates for March 16, 2023


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CF Foundation Invests Up to $2M in Nanite Inc. to Conduct Early-Stage Research in Gene Delivery

We are
investing up to $2 million in Nanite Inc. to explore a new way to deliver genetic therapies into the lung ([link removed])
— delivery is one of the most significant challenges in creating a transformative treatment for all people with cystic fibrosis. Nanite will be developing a polymer nanoparticle, an exceptionally small synthetic molecule that can carry genetic therapies into the lung. Polymer nanoparticles are potentially safer and may be more versatile and stable than other delivery methods.

Our investment in Nanite Inc. » ([link removed])




Advocacy in Action at March on the Hill

Last week, more than 175 advocates, including nearly 30 people with CF who participated virtually, and more than 4,500 community members from across the country, raised their collective voices and
advocated for the CF community during the Foundation ([link removed]). Together, we met with more than 200 members of Congressional offices and sent more than 14,000 messages, helping to move the needle in support of the HELP Copays Act and the PASTEUR Act.

How you made an impact » ([link removed])


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Find a Lung Transplant Center


People who are considering a lung transplant or maintaining their health after a transplant ([link removed])
can find important information about transplant centers, such as how many transplants each center has performed in the past four years — overall and for people with cystic fibrosis.

Search transplant centers » ([link removed])




3 Things I Learned Planning My Wedding While Having CF


Chelsea Stahl (Spruance) was afraid she wouldn’t get married because of her cystic fibrosis ([link removed]). She shared the three approaches that helped her manage her CF while celebrating her dream wedding.

Read Chelsea ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


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www.cff.org ([link removed])

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