From the Narrative Matters series
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Tuesday, March 14, 2023 | The Latest Research, Commentary, And News From
Health Affairs
Dear John,
William Frist, one of the cochairs of the Health Affairs Council on
Health Care Spending and Value, published his final article in Forbes
discussing administrative waste and inefficiencies in US health care
spending
<[link removed]>.
Frist's articles are part of a four-part series on the Health Affairs
Council on Health Care Spending and Value's newly released report, "A
Road Map for Action
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As part of the Narrative Matters series, author Susanna J. Smith warns
against failing to protect people at risk for genetic disease
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from discrimination, claiming it may have a silencing effect and erode
trust in the patient-provider relationship.
"My life shouldn't be worth less than anyone else's because of a
mutation in my mother's DNA," she writes.
The Genetic Information Nondiscrimination Act prohibits health insurance
companies from using genetic information to deny coverage or raise
premiums and outlaws genetic discrimination by employers. However, the
act offers no protection for those seeking life, long-term care, or
disability insurance.
"In a future where many-maybe most-people will have access to
predictive genetic information, how will life, long-term care, and
disability insurance work?" Smith asks.
She advocates for more legal protections against genetic discrimination
in insurance and "more nuanced mechanisms for protecting genetic
information in the health care system," particularly "more clear
guidance for how to use genetic information in ways that align with a
patient's values."
To listen to authors read their Narrative Matters articles, subscribe to
the Narrative Matters podcast feed.
Read More
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Did you find this article interesting? Share it on your social channels.
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Advertisement
Elsewhere At Health Affairs
Elsewhere in Forefront, Arthur Kellermann argues that the military
health system has lost so much capacity
<[link removed]>
that it would struggle to manage a moderate-size conflict, much less a
major war, and that decisive action is needed.
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Daily Digest
Keeping Quiet About Genetic Risk
<[link removed]>
Susanna J. Smith
We Must Rebuild America's Military Health System-Before It's Too
Late
<[link removed]>Arthur
L. Kellermann
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Jennifer Kao On Drug Repurposing
Health Affairs Editor-in-Chief Alan Weil interviews Jennifer Kao from
the UCLA Anderson School of Management on her paper in the March issue
examining drug repurposing for COVID-19 treatments during the pandemic.
Listen Here
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Jobs At Health Affairs
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contributing to the leading research and analysis on improving health
policy and health care.
Our team contains a deep bench of experienced professionals in health
policy, dedicated to making health care better. Below are the current
job openings at Health Affairs:
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mailto:
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About Health Affairs
Health Affairs is the leading peer-reviewed journal
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health care, and policy. Published monthly by Project HOPE, the journal
is available in print and online. Late-breaking content is also found
through healthaffairs.org <healthaffairs.org>, Health Affairs Today
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Update <[link removed]>. Â
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health care workers to save lives across the globe. Project HOPE has
published Health Affairs since 1981.
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