Join our Online Day of Action


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Advocate,

Congress is considering two bills that could help people with cystic fibrosis and we need your help to urge them to act swiftly.

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The HELP Copays Act ([link removed])


The HELP Copays Act helps to lower out-of-pocket costs for people with CF by:

1. Restricting cost containment strategies, like accumulators and maximizers
2. Requiring health insurance plans to count the value of any drug manufacturer and non-profit copay assistance received toward the enrollee's annual deductible and out-of-pocket maximum



The bill also ensures that any item or service covered by the health insurance plan is considered part of the insurer’s essential health benefits package. This will help to protect patients from current practices that exclude CF specialty medications.

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The PASTEUR Act ([link removed])


The PASTEUR Act would address the need for new, effective antibiotics for difficult-to-treat infections by providing consistent payments to antibiotic developers for access to their products, offering a sustainable incentive structure that does not currently exist. This would help much-needed antibiotics stay on the market while also encouraging appropriate use, making them available to those who need them, like people with CF.

Today, we ask that you stand with our CF advocates who are meeting with members of Congress during today's March on the Hill by joining our Online Day of Action to urge your lawmakers to address the needs of people living with CF. It only takes two minutes to send your representatives a message from your phone or computer.


ADVOCATE NOW ([link removed])


You can help amplify the voice of the CF community. Ask your members of Congress to support both the PASTEUR Act and HELP Copays Act ([link removed]).

Mary Dwight

Senior Vice President, Chief Policy & Advocacy Officer


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4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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