Families and clinicians join forces to discover treatments.

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Issue 18 | February 2023

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Khari McCrary had her first seizure when she was 12 years old. At first, she was diagnosed with epilepsy. But two years later, her seizures turned more severe and she started having multiple in a day. After a week of testing in a hospital, she finally received the correct diagnosis: Lafora disease.

Learn more about Lafora disease and the inspiring work of families and scientists working towards a cure.

Khari McCrary, a teenage girl, wearing a graduation cap and sitting in a wheelchair smiles in the school parking lot. ([link removed] )

What Is Lafora Disease?
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