Your Monthly Digest from the I.H.S. 

Irish Haemophilia Society eZine: July 2019
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October Conference 2019

Dates: Friday 18th to Sunday 20th October 2019
Venue: Shearwater Hotel, Ballinasloe

The Irish Haemophilia Society are pleased to announce that our October Conference will take place over the weekend of Friday 18th to Sunday 20th of October 2019 in the Shearwater Hotel, Ballinasloe.

If you would like to attend this conference, we would advise you to book in as soon as possible!

The closing date for registrations is Monday, September 16th 2019.

For further info, please click here ([link removed]) .

To book your place, please contact Aoife in the office on 01 6579900, or you can book in online here.

**Please note, for online bookings, you must pay for the full cost of the conference at the time of booking online**

We are looking forward to an informative, fun and busy weekend already. We hope to see you in Ballinasloe!

You will receive a confirmation letter in the post two weeks before the event with all the details you'll need to know but for now, you can peruse the Preliminary Programme below

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Educational Grants 2019

The Society offers educational grants each year to people with haemophilia or related bleeding disorders, including a person with carrier status and/or their immediate family members who go on to do a post second level educational course.

The purpose of the grant is to offer financial support to students to assist them with the extra expenses involved with their studies.

We are delighted to inform you that applications are now invited for the 2019 Educational Grants

** Please note, even if you are eligible to apply for more than one grant, you can only apply for one of them.

You can apply online or you can download the application forms below, and post the completed forms into the office.

The closing date for applications is Friday 27th September, 2019.

There is more info on the various grants available below too, please click here ([link removed]) .

The Maureen & Jack Downey Educational Grant | Apply Online here ([link removed]) or Download Application Form here ([link removed])

Margaret King Educational Grant | Apply Online here ([link removed]) or Download Application Form here ([link removed])

Father Paddy McGrath Educational Grant | Apply Online here ([link removed]) or Download Application Form here ([link removed])

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Summer Magazine

The summer issue of our magazine is out now and comes packed with loads great and interesting articles from members and staff, news and updates, upcoming projects, reports from events, and much more.

There are reports from the EHC Leadership Conference, Talking Red Conference in Belfast, Father & Son(s) weekend and Twinning Programme in Vietnam and Nina provides an update on Fundraising and Planned Giving.

Brian pays tribute to friend and I.H.S. stalwart Ger O’Reilly – it is a fitting tribute to a cheerful, resilient and all round nice guy. There is also a PROBE update and he shares his thoughts on Dr. Barry Harrington’s recent retirement as Chairperson of the National Haemophilia Council.

You will also find information on the I.H.S. Educational Grants; the grants are massively beneficial and can go some way to helping cover the cost and expense of your education. While elsewhere, you can peruse the preliminary programme for our October Conference; we’ll be sending out booking forms later in the summer so keep any eye out for them – and of course, there are dates for your diary in 2019.

You should all have received a copy in the post by now, but if you would like to read the digital version, you can do so here ([link removed]) .

Also, you would like to contribute an article for a future issue or suggest a story, or area that you would like to see covered, please don’t hesitate to get in touch at [email protected] (mailto:[email protected])

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Brian O’Mahony Award

Nominations are open from August 1 2019 for the ‘Brian O’Mahony Award for outstanding contribution to haemophilia care in Ireland’.

Nominations can be proposed only by members of the Society. Members of the current board or staff cannot be nominated.

If you would like to nominate an individual who, in your opinion, has made a real difference in haemophilia care in Ireland, please send your nomination to:

[email protected] (mailto:[email protected])

The closing date for nominations is September 27 2019.
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Outreach & Support Update
As we work to source a suitable replacement for Lyndsey’s outreach role, we have put some temporary measures in place with regard support and outreach.

If you are an adult and would like to talk with somebody in confidence about any concerns you have, if you would like some information or if you would like to arrange a home, school or hospital visit, please contact:

Brian, Debbie or Nina on 01 657 9900

If you are a parent and you would like to arrange a hospital visit for your child, a home visit or a school visit, or if you would just like a chat, please contact:

Robert on 01 657 9900
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I.H.S. Youth Programme
The I.H.S. Youth Leadership Programme aims to facilitate young people affected by bleeding disorders to communicate with each other, share experiences and learn life skills.

The programme is open to young members aged between 12 and 17, and there are two meetings organised for August; one in Dublin and one in Limerick.

The meetings will cover areas such as exercise, health, mental health, stress and anxiety, and will look at career development.
Dublin Meeting
Venue: I.H.S. Office, First Floor, Cathedral Court, New Street, Dublin 8
Date & Time: Saturday, August 17, 2019 @ 11:30 to 13:00
&
Limerick Meeting
Venue: Limerick Strand Hotel: O’Callaghan Boardroom
Date & Time: Saturday, August 24, 2019 @ 11:30 to 13:00

For more info or to book a place, please contact Rob in the office on 01 657 9900 or [email protected] (mailto:[email protected])

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Hyde Square Apartments
Just to remind you all, that the apartment facility for members in Hyde Square apartments are available to:

▪ People with haemophilia or related bleeding disorders from outside of Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic.

▪ An immediate family member, a spouse, a partner and/or child of the person with haemophilia or related bleeding disorder from outside Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic, or while a family member is an in-patient.

If you would like to make a booking, please contact Julia in the office on 01 6579900*.

For more info, please click here ([link removed]) .

* A nominal fee of €10.00 per booking, per night will be levied to offset the cost of cleaning and routine maintenance.

Dates for Your Diary

2019

August:

I.H.S. Youth Leadership Programme

Dublin Meeting
Date: Saturday, August 17, 2019 @ 11:30 to 13:00
Venue: I.H.S. Office, First Floor, Cathedral Court, New Street, Dublin 8

Limerick Meeting
Date: Saturday, August 24, 2019 @ 11:30 to 13:00
Venue: Limerick Strand Hotel: O’Callaghan Boardroom

September:

Newly Diagnosed Conference
Dates: Saturday 21st & Sunday 22nd September
Venue: The Westgrove Hotel, Clane, Co Kildare

October:

October Conference
Date: Friday 18th to Sunday 20th of October
Venue: Shearwater, Ballinsloe, Galway

November:

Haemophilia B Information Day
Date: Saturday, November 9th
Venue: Hotel Kilkenny, Kilkenny

2020

March:

AGM & Conference
Dates: Friday, March 6th to Sunday, March 8th
Venue: Slieve Russell Hotel, Co Cavan

October:

October Conference
Dates: Friday, October 16th to Sunday, October 18th
Venue: Mount Woseley Hotel, Co Carlow

You can keep up to date with the latest I.H.S. info on Facebook ([link removed]) & Twitter ([link removed]) .

GDPR

The introduction of General Data Protection Regulation (GDPR) came into effect on 25th May, 2018.

GDPR is the EU’s new privacy law and affects every organisation using personal data including the Irish Haemophilia Society.

If you no longer wish to receive communication from us or wish to be removed from our database, please let us know and we will remove your details.

Planned Giving
The Irish Haemophilia Society and other charities are facing an uncertain financial future.

We continue to improve and increase our programmes, conferences, activities and publications for the benefit of our ever increasing number of members and families with haemophilia and bleeding disorders.

If you would like more information on our Planned Giving contributions and how you can help, please click here ([link removed]) .
Summer Holidays!
Are you planning on jetting off on holiday this summer??

Be sure to be prepared with all the necessary documents and of course, the I.H.S travel card.

If would like a reminder of everything you will need, the necessary I.H.S. travel tips are available from our website, haemophilia.ie ([link removed]) .

Or if you need a travel card sent out to you, give us a call on
01 657 9900 or email [email protected] (mailto:[email protected])

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LINKS OF INTEREST
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Irish Haemophilia Society
Cathedral Court
New St,
Dublin 8, Dublin
Ireland

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