To work toward addressing health inequities in cystic fibrosis, the Foundation’s External Racial Justice Working Group has been focusing on the unique challenges Black people with CF face. The group, comprising Foundation staff and external advisors from the broader CF community, including people with CF, family members, researchers, and care team members, has released its recommendations in two key focus areas: health equity and outcomes and diverse workforce development.

Read the recommendations »

This week, we issued a statement supporting the reintroduction of the Help Ensure Lower Patient (HELP) Copays Act, urging Congress to pass the bill swiftly. This bipartisan bill requires copay assistance to be applied to patient cost-sharing requirements and closes a loophole in private employer health plan essential health benefits coverage. 

Read our statement »

Adults with cystic fibrosis are invited to join BreatheCon February 23-25! During this unique, virtual event, you’ll have an opportunity to gather with others in various ways including panels, small group discussions, affinity groups, social activities, and more. Whether you’re seeking support, looking to share lessons learned, or just want to socialize, you are welcomed and encouraged to attend.

Register now »

Have you or your child with cystic fibrosis experienced symptoms such as arthritis, rash, unusual gastrointestinal symptoms, or been diagnosed with an autoimmune condition, in addition to CF? We want to hear from you. Join Community Voice today to participate in an anonymous survey to help researchers understand symptoms in people with CF that might suggest an autoimmune disease and gain insights from those who have been diagnosed with an autoimmune disease. By joining, you’ll also learn about the experiences of others with CF. 

Sign up for Community Voice »

This week, young professionals ages 21-40 who want to grow both personally and professionally are invited to join Tomorrow’s Leaders and see what it’s all about! There are so many ways to get involved, virtually and in-person, including participating in online professional development opportunities, helping the CF community through advocacy efforts, and supporting local events. 

Connect with other young professionals »