From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date February 2, 2023 9:35 PM
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The latest updates for February 2, 2023


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Connect With the CF Community at a Local Event

Whether you walk, climb, cycle, hike, or create your own unique activity, you are part of a larger community committed to fulfilling our mission: finding a cure for cystic fibrosis.
Register now ([link removed])
for Great Strides, CF Climb, CF Cycle for Life, ROSE UP, Team CF, or an Xtreme Hike near you, and connect with others in the local CF community.

Register now » ([link removed])


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Need a Partner in CF? Connect With Compass

Compass, our personalized, one-on-one service, can
provide people living with CF and their families a partner in dealing with challenges related to life with CF ([link removed])
% link:[link removed] name="Compass link in text" content="" %], no matter where they are on their journey. While insurance navigation is a staple of Compass, people with CF and their loved ones also use the service to navigate financial assistance, get answers to legal questions related to work, school, and government benefits, and connect to resources during natural disasters.

Connect with Compass today » ([link removed])




Watch our National Annual Meeting on YouTube


The recording from our National Annual Meeting is now on YouTube ([link removed]). Hear from our President and CEO, Michael Boyle, MD, about his vision for the year ahead, watch a panel discussion with CF Foundation leaders, and celebrate the progress we made together in 2022.

Watch now » ([link removed])


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New Blog: Living in the Gray Area

When
Álvaro La Parra-Pérez received his daughter’s sweat test results ([link removed]), it revealed that she was in the intermediate (indeterminate) range for a cystic fibrosis diagnosis. Dealing with this uncertainty hasn't been easy, but Álvaro remains hopeful.

Read Álvaro’s story » ([link removed])




WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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