See the progress we made in 2019 and kick start 2020
Dear Advocate,
2019 was a momentous year for the cystic fibrosis community. Thanks to your tireless work, we remained steadfast in our commitment to educate decision-makers on key issues that impact people living with CF. Together in 2019, we:
Successfully advocated to advance two Affordable Care Act stabilization bills and newborn screening reauthorization in the U.S. House of Representatives, sending more than 9,000 messages to lawmakers on these issues in the process.
Achieved significant state wins to reinstate funding for cystic fibrosis programs, drug pricing transparency, and expanded coverage of CFTR modulators.
Recruited more than 2,000 new advocates to strengthen our collective voice.
As we enter this new decade and a new era in cystic fibrosis, we celebrate our accomplishments, but know there is still so much work to be done. That is why we are counting on you to help continue our important progress.
