From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date January 5, 2023 9:27 PM
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Register for the National Annual Meeting

You’re invited! Join us to hear President and CEO Michael Boyle, MD, share his vision for the year ahead during our
National Annual Meeting, Thursday, January 26 at 8 p.m. ET/ 5 p.m. PT ([link removed]). We will host an engaging panel discussion with CF Foundation leaders, including Chief Scientific Officer, Steven Rowe, MD, Whitney Brown, MD, Tiffany Burnett, JP Clancy, MD, and Mary Dwight. You will have an opportunity to ask them questions!

Save your seat » ([link removed])


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Thank You for Supporting the PASTEUR Act

The cystic fibrosis community has led the charge in advocating for the PASTEUR Act since it was first introduced in June 2021, and thanks to you, we made tremendous progress. While the bill ultimately did not pass, we are not done yet! The Foundation will continue to support this legislation when it’s reintroduced in the new Congress to bolster antibiotic development. Thank you for everyone who shared their story to help garner support for this incredibly important bill. Keep up to date on more chances to advocate for the CF community by
signing up for advocacy alerts ([link removed]).

Sign up today » ([link removed])




Make Meaningful New Connections in the New Year with CF Peer Connect

Start 2023 off with a new connection to someone who understands. Everyone needs a strong support system, and it can be helpful to talk to someone also affected by CF. No matter your age or stage in life, the
CF Peer Connect team can match you with someone ([link removed])
who has experienced your situation, whether you’re facing a major CF milestone or dealing with day-to-day life.

Request a connection » ([link removed])


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Tips on How to Support Your Partner With CF

After Nathan Brown’s partner was diagnosed with cystic fibrosis,
he wanted to learn how to support her ([link removed])
and keep himself from becoming rundown. Over time, he learned that doing something small, like ordering medicines, can be incredibly helpful.

Read Nathan ([link removed])




WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

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