The latest updates for December 22, 2022


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Directors From 206 Care Centers Sign On To A Letter Citing Clinical Consequences Of Vertex Decision

Recently, 206 care center program directors
signed a letter ([link removed])
to Vertex explaining that their decision to implement changes to their copay assistance program would negatively impact the CF community, with potential for clinical implications. The Foundation continues urging Vertex to reverse their decision before it goes into effect January 1.

Read more » ([link removed])




Newly Expanded CF Foundation Lab Will Enable More Research Into Genetic Therapies

We’re excited to announce that
we expanded the CF Foundation’s lab footprint ([link removed]). This expansion creates room for startup companies and industry scientists to work and learn alongside lab staff. By sharing our expertise, we will help speed up the development of new treatments.

Read about the expansion » ([link removed])


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The Latest in CF Research

We have
invested up to an additional $4.85 million in Aridis Pharmaceuticals ([link removed])
to complete a Phase 2a clinical trial for a non-traditional anti-infective drug that could help fight drug-resistant infections in people with cystic fibrosis.

Learn more » ([link removed])




NACFC Highlights Webinar Now Available on YouTube

In case you missed it, the recording from our NACFC highlights webinar with CF research experts is
now available to watch on YouTube ([link removed]). Among other research and care news, you will learn about the results of the Simplify study, in addition to the latest genetic therapies under development.

Watch the recording » ([link removed])
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WE WILL NOT REST UNTIL WE FIND A CURE


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