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After the “CRISPR Babies” Sentencing: Where Do We Go From Here?
| From | Biopolitical News & Views <[email protected]> |
| Subject | After the “CRISPR Babies” Sentencing: Where Do We Go From Here? |
| Date | January 11, 2020 4:30 PM |
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SUBSCRIBE ( [link removed] ) | WEBSITE ( [link removed] ) | FACEBOOK ( [link removed] ) | TWITTER ( [link removed] ) | YOUTUBE ( [link removed] ) | DONATE ( [link removed] ) | CONTACT ( mailto:[email protected] )
COMMENTARY ( #COMM ) CGS IN THE NEWS ( #MEDIA ) WHAT WE'RE READING ( #READ )
Read our comments ( [link removed] ) on the latest development in the “CRISPR babies” scandal. While we applaud the sentencing, as CGS' Katie Hasson observes, "The risks of heritable genome editing extend beyond individual countries. It is a global concern and therefore a global responsibility."
[ COMMENTARY SECTION HEADER ]
Reactions to Jail Sentences for “CRISPR Babies” Scientists, and What Comes Next ( [link removed] )
Pete Shanks, Biopolitical Times | 01.09.2020
How should the sentencing of "CRISPR Babies" scientist He Jiankui be interpreted? Benjamin Hurlbut, Françoise Baylis, and others from across the spectrum of human biotechnology and bioethics stakeholders weighed in immediately after the news broke over the western New Years holiday.
-------------------------
CGS Year In Review: The Fight for Genetic Justice in 2019 ( [link removed] )
CGS Staff, Biopolitical Times | 12.31.2019
CGS covered a lot of ground this year: from protesting heritable genome modification, to pursuing a genetic privacy lawsuit, to exposing fertility scams, to relaunching a project focused on international commercial surrogacy, and much more.
-------------------------
The Best of Biopolitical Times: 2019 Edition ( [link removed] )
CGS Staff, Biopolitical Times | 12.24.2019
Biopolitical Times highlights the latest developments in the social, political, and ethical implications of human biotechnologies. This list offers the highlights of a year that saw many historic developments.
[ COMMENTARY SECTION HEADER ]
The U.S. Government’s Mass Collection of Immigrant DNA Hints at Surveillance Future ( [link removed] )
Emily Mullin, Medium One Zero | 01.08.2020
The US government has been critical of forced DNA collection in China, where DNA and other biometric data is being gathered from Muslim Uighurs. Now, it's happening domestically as well, a practice that, as CGS’ Katie Hasson notes, “exposes not only individuals, but also their families in the U.S. and abroad, to serious privacy risks.”
-------------------------
The Corrupting Syndrome of the Super-rich ( [link removed] )
Anis Chowdhury, The Financial Express | 01.07.2020
All indicators are that only the wealthy would be able to afford gene-edited babies. Says CGS Executive Director Marcy Darnovsky, "Genome editing for human embryos is an unnecessary threat to society," and would produce a population of genetic “haves” and “have nots.”
-------------------------
Scientist Behind First CRISPR-Modified Babies Sentenced to Three Years in Prison ( [link removed] )
Theresa Machemer, Smithsonian Magazine | 12.31.2019
He Jiankui wasn’t the only scientists sentenced over New Year’s. Two other scientists, Zhang Renli and Qin Jinzhou pled guilty and received jail sentences for participating in what CGS’ Marcy Darnovsky called a “reckless and self-serving” experiment.
-------------------------
Chinese Researcher Who Created Gene-Edited Babies Sentenced To 3 Years In Prison ( [link removed] )
Merrit Kennedy, NPR | 12.30.2019
After hearing of He’s sentencing, CGS Executive Director Marcy Darnovsky commented she hopes the scientist’s "reckless and self-serving acts […] highlight the broader and deeper risks — and the pointlessness — of any proposal to use gene editing in human reproduction."
[ COMMENTARY SECTION HEADER ]
Animals ( #1 ) | Assisted Reproduction ( #6 ) | Genomics ( #2 )
Heritable Genome Editing ( #4 ) | Stem Cells ( #3 ) | Surrogacy ( #5 )
ANIMALS
-------------------------
Scientists Aren’t Sure Why Identical Twins Differ. Armadillo Quads Offer an Answer. ( [link removed] )
Sharon Begley, STAT | 12.20.2019
Armadillos always have genetically identical quadruplets, which make them unique test subjects for inquiries about why mammals born with the same genes don’t always share physical characteristics.
( [link removed] )
Eyeing Organs for Human Transplants, Companies Unveil the Most Extensively Gene-edited Pigs Yet ( [link removed] )
Kelly Servick, Science | 12.19.2019
CRISPR is allowing researchers to make increasingly elaborate genetic tweaks to deal with issues that cause human immune rejections of transplant organs grown in animals
( [link removed] )
Two Pigs Engineered to Have Monkey Cells Born in China ( hhttps://www.geneticsandsociety.org/article/two-pigs-engineered-have-monkey-cells-born-china )
Michael Le Page, New Scientist | 12.06.2019
Two piglets born in Beijing are reported to be the first full-term pig-monkey chimeras.
( [link removed] )
ASSISTED REPRODUCTION
-------------------------
What Happened to All Those Frozen Eggs? ( [link removed] )
Sarah Elizabeth Richards, The New York Times | 12.21.2019
The medical establishment advertised egg freezing as a way to prolong fertility and mitigate gender inequity by giving women more freedom to pursue their careers. In reality, it’s not clear whether egg freezing will really allow a significant number of women to have children later in life.
GENOMICS
-------------------------
A Genetic Test Led Seven Women in One Family to Have Major Surgery. Then the Odds Changed. ( [link removed] )
Amy Dockser Marcus, The Wall Street Journal | 12.20.2019
As the science surrounding the BRCA gene has evolved, some women who took drastic surgical measures to protect themselves from breast and ovarian cancer are discovering they may never have been at high risk.
We’re Entering a New Phase in Law Enforcement’s Use of Consumer Genetic Data ( [link removed] )
Nila Bala, Slate | 12.19.2019
Genetic genealogy has ushered in a new era devoid of rules concerning genetic privacy. With no legal regulations providing clarity on how and when genetic genealogy should be used to fight crime, private entities are left in charge of the decision-making.
The Dark Side of Our Genealogy Craze ( [link removed] )
Honor Sachs, The Washington Post | 12.13.2019
Even as genealogy offers belonging to those who have been historically denied access to knowledge of their ancestry, it empowers those who seek to divide, deny, and marginalize segments of society.
10 Years Ago, DNA Tests Were the Future of Medicine. Now They're a Social Network—and a Data Privacy Mess. ( [link removed] )
Peter Aldhous, Buzzfeed News | 12.11.2019
Personalized medicine was the dream, but the reality of direct-to-consumer DNA testing looks more like “Facebook for genes.”
A DNA Firm That Caters to Police Just Bought a Genealogy Site ( [link removed] )
Megan Molteni, Wired | 12.09.2019
GEDmatch was the site used to identify a suspect in the Golden State Killer case. Now, what was once a hobbyist genealogy site has been purchased by the forensic genomics firm Verogen, which specializes in next-generation DNA testing services catered to law enforcement.
HERITABLE GENOME EDITING
-------------------------
Scientific Ethics and Gene Edited Babies ( [link removed] )
Françoise Baylis, The Boston Globe | 01.05.2020
China’s response to He’s reckless experiment indicates that the government takes it seriously and is willing to send a message. But it should be noted that He was trained in the United States—not China—and that some of his US colleagues knew about the experiment and did nothing.
Prison Sentence for Creator of First CRISPR Babies Reignites Ethical Debate ( [link removed] )
Françoise Baylis, The Conversation | 01.05.2020
The prison terms given to He Jiankui and his colleagues will not bring closure to the “CRISPR babies” scandal. The birth of three genome-edited babies was not just the work of three scientists, and there is still no agreed-upon, ethically sound reason to pursue using this technology for reproduction.
Chinese Bioethicists: He Jiankui’s Crime is More than Illegal Medical Practice ( [link removed] )
Ruipeng Lei and Renzong Qiu, The Hastings Center Bioethics Forum | 01.04.2020
It is ridiculous that the He Jiankui incident has been reduced to a case of illegal medical practice. But the violations of administrative regulations and ethical norms that He and his accomplices committed constitute no other crime in China.
Chinese Scientist Who Genetically Edited Babies Gets 3 Years in Prison ( [link removed] )
Sui-Lee Wee, The New York Times | 12.30.2019
In a private trial, the court found He Jiankui guilty of forging approval documents from ethics review boards to recruit couples in which the man had H.I.V. and the woman did not.
A Year After the First CRISPR Babies, Stricter Regulations Are Now in Place ( [link removed] )
Françoise Baylis, The Conversation | 12.10.2019
Despite the absence of a moratorium, there are indications that the governments of China and Russia and the World Health Organization are taking heritable genome editing seriously and attempting to prevent another reckless human experiment.
STEM CELLS
-------------------------
The California Stem Cell Program's $5.5-Billion Funding Request Might Be Its Downfall ( [link removed] )
Michael Hiltzik, Los Angeles Times | 12.08.2019
The ballot initiative fails to justify nearly doubling CIRM’s funding and renders the program immune to legislative oversight, despite its immense demand on taxpayer resources.
SURROGACY
-------------------------
Buyer Beware: A Maryland Surrogacy Agency Was Scamming Vulnerable Hopeful Parents ( [link removed] )
Ellen Trachman, Above the Law | 01.08.2020
The Surrogacy Group promised its clients services like matching intended parents with gestational surrogates, assisting clients with the surrogacy process, and managing funds. In many cases, however, the group’s owner pocketed the money, leaving both surrogates and intended parents high and dry.
SUBSCRIBE ( [link removed] ) | WEBSITE ( [link removed] ) | ABOUT US ( [link removed] ) | WHO WE ARE ( [link removed] ) | CONTACT ( mailto:[email protected] )
( [link removed] )
-------------------------
This e-mail was sent to [email protected] by [email protected].
Center for Genetics & Society, 1122 University Ave., Suite 100, Berkeley, California 94702
If you no longer wish to receive commercial e-mail messages from [email protected], please select the following link: Remove ( [link removed] ).
SUBSCRIBE ( [link removed] ) | WEBSITE ( [link removed] ) | FACEBOOK ( [link removed] ) | TWITTER ( [link removed] ) | YOUTUBE ( [link removed] ) | DONATE ( [link removed] ) | CONTACT ( mailto:[email protected] )
COMMENTARY ( #COMM ) CGS IN THE NEWS ( #MEDIA ) WHAT WE'RE READING ( #READ )
Read our comments ( [link removed] ) on the latest development in the “CRISPR babies” scandal. While we applaud the sentencing, as CGS' Katie Hasson observes, "The risks of heritable genome editing extend beyond individual countries. It is a global concern and therefore a global responsibility."
[ COMMENTARY SECTION HEADER ]
Reactions to Jail Sentences for “CRISPR Babies” Scientists, and What Comes Next ( [link removed] )
Pete Shanks, Biopolitical Times | 01.09.2020
How should the sentencing of "CRISPR Babies" scientist He Jiankui be interpreted? Benjamin Hurlbut, Françoise Baylis, and others from across the spectrum of human biotechnology and bioethics stakeholders weighed in immediately after the news broke over the western New Years holiday.
-------------------------
CGS Year In Review: The Fight for Genetic Justice in 2019 ( [link removed] )
CGS Staff, Biopolitical Times | 12.31.2019
CGS covered a lot of ground this year: from protesting heritable genome modification, to pursuing a genetic privacy lawsuit, to exposing fertility scams, to relaunching a project focused on international commercial surrogacy, and much more.
-------------------------
The Best of Biopolitical Times: 2019 Edition ( [link removed] )
CGS Staff, Biopolitical Times | 12.24.2019
Biopolitical Times highlights the latest developments in the social, political, and ethical implications of human biotechnologies. This list offers the highlights of a year that saw many historic developments.
[ COMMENTARY SECTION HEADER ]
The U.S. Government’s Mass Collection of Immigrant DNA Hints at Surveillance Future ( [link removed] )
Emily Mullin, Medium One Zero | 01.08.2020
The US government has been critical of forced DNA collection in China, where DNA and other biometric data is being gathered from Muslim Uighurs. Now, it's happening domestically as well, a practice that, as CGS’ Katie Hasson notes, “exposes not only individuals, but also their families in the U.S. and abroad, to serious privacy risks.”
-------------------------
The Corrupting Syndrome of the Super-rich ( [link removed] )
Anis Chowdhury, The Financial Express | 01.07.2020
All indicators are that only the wealthy would be able to afford gene-edited babies. Says CGS Executive Director Marcy Darnovsky, "Genome editing for human embryos is an unnecessary threat to society," and would produce a population of genetic “haves” and “have nots.”
-------------------------
Scientist Behind First CRISPR-Modified Babies Sentenced to Three Years in Prison ( [link removed] )
Theresa Machemer, Smithsonian Magazine | 12.31.2019
He Jiankui wasn’t the only scientists sentenced over New Year’s. Two other scientists, Zhang Renli and Qin Jinzhou pled guilty and received jail sentences for participating in what CGS’ Marcy Darnovsky called a “reckless and self-serving” experiment.
-------------------------
Chinese Researcher Who Created Gene-Edited Babies Sentenced To 3 Years In Prison ( [link removed] )
Merrit Kennedy, NPR | 12.30.2019
After hearing of He’s sentencing, CGS Executive Director Marcy Darnovsky commented she hopes the scientist’s "reckless and self-serving acts […] highlight the broader and deeper risks — and the pointlessness — of any proposal to use gene editing in human reproduction."
[ COMMENTARY SECTION HEADER ]
Animals ( #1 ) | Assisted Reproduction ( #6 ) | Genomics ( #2 )
Heritable Genome Editing ( #4 ) | Stem Cells ( #3 ) | Surrogacy ( #5 )
ANIMALS
-------------------------
Scientists Aren’t Sure Why Identical Twins Differ. Armadillo Quads Offer an Answer. ( [link removed] )
Sharon Begley, STAT | 12.20.2019
Armadillos always have genetically identical quadruplets, which make them unique test subjects for inquiries about why mammals born with the same genes don’t always share physical characteristics.
( [link removed] )
Eyeing Organs for Human Transplants, Companies Unveil the Most Extensively Gene-edited Pigs Yet ( [link removed] )
Kelly Servick, Science | 12.19.2019
CRISPR is allowing researchers to make increasingly elaborate genetic tweaks to deal with issues that cause human immune rejections of transplant organs grown in animals
( [link removed] )
Two Pigs Engineered to Have Monkey Cells Born in China ( hhttps://www.geneticsandsociety.org/article/two-pigs-engineered-have-monkey-cells-born-china )
Michael Le Page, New Scientist | 12.06.2019
Two piglets born in Beijing are reported to be the first full-term pig-monkey chimeras.
( [link removed] )
ASSISTED REPRODUCTION
-------------------------
What Happened to All Those Frozen Eggs? ( [link removed] )
Sarah Elizabeth Richards, The New York Times | 12.21.2019
The medical establishment advertised egg freezing as a way to prolong fertility and mitigate gender inequity by giving women more freedom to pursue their careers. In reality, it’s not clear whether egg freezing will really allow a significant number of women to have children later in life.
GENOMICS
-------------------------
A Genetic Test Led Seven Women in One Family to Have Major Surgery. Then the Odds Changed. ( [link removed] )
Amy Dockser Marcus, The Wall Street Journal | 12.20.2019
As the science surrounding the BRCA gene has evolved, some women who took drastic surgical measures to protect themselves from breast and ovarian cancer are discovering they may never have been at high risk.
We’re Entering a New Phase in Law Enforcement’s Use of Consumer Genetic Data ( [link removed] )
Nila Bala, Slate | 12.19.2019
Genetic genealogy has ushered in a new era devoid of rules concerning genetic privacy. With no legal regulations providing clarity on how and when genetic genealogy should be used to fight crime, private entities are left in charge of the decision-making.
The Dark Side of Our Genealogy Craze ( [link removed] )
Honor Sachs, The Washington Post | 12.13.2019
Even as genealogy offers belonging to those who have been historically denied access to knowledge of their ancestry, it empowers those who seek to divide, deny, and marginalize segments of society.
10 Years Ago, DNA Tests Were the Future of Medicine. Now They're a Social Network—and a Data Privacy Mess. ( [link removed] )
Peter Aldhous, Buzzfeed News | 12.11.2019
Personalized medicine was the dream, but the reality of direct-to-consumer DNA testing looks more like “Facebook for genes.”
A DNA Firm That Caters to Police Just Bought a Genealogy Site ( [link removed] )
Megan Molteni, Wired | 12.09.2019
GEDmatch was the site used to identify a suspect in the Golden State Killer case. Now, what was once a hobbyist genealogy site has been purchased by the forensic genomics firm Verogen, which specializes in next-generation DNA testing services catered to law enforcement.
HERITABLE GENOME EDITING
-------------------------
Scientific Ethics and Gene Edited Babies ( [link removed] )
Françoise Baylis, The Boston Globe | 01.05.2020
China’s response to He’s reckless experiment indicates that the government takes it seriously and is willing to send a message. But it should be noted that He was trained in the United States—not China—and that some of his US colleagues knew about the experiment and did nothing.
Prison Sentence for Creator of First CRISPR Babies Reignites Ethical Debate ( [link removed] )
Françoise Baylis, The Conversation | 01.05.2020
The prison terms given to He Jiankui and his colleagues will not bring closure to the “CRISPR babies” scandal. The birth of three genome-edited babies was not just the work of three scientists, and there is still no agreed-upon, ethically sound reason to pursue using this technology for reproduction.
Chinese Bioethicists: He Jiankui’s Crime is More than Illegal Medical Practice ( [link removed] )
Ruipeng Lei and Renzong Qiu, The Hastings Center Bioethics Forum | 01.04.2020
It is ridiculous that the He Jiankui incident has been reduced to a case of illegal medical practice. But the violations of administrative regulations and ethical norms that He and his accomplices committed constitute no other crime in China.
Chinese Scientist Who Genetically Edited Babies Gets 3 Years in Prison ( [link removed] )
Sui-Lee Wee, The New York Times | 12.30.2019
In a private trial, the court found He Jiankui guilty of forging approval documents from ethics review boards to recruit couples in which the man had H.I.V. and the woman did not.
A Year After the First CRISPR Babies, Stricter Regulations Are Now in Place ( [link removed] )
Françoise Baylis, The Conversation | 12.10.2019
Despite the absence of a moratorium, there are indications that the governments of China and Russia and the World Health Organization are taking heritable genome editing seriously and attempting to prevent another reckless human experiment.
STEM CELLS
-------------------------
The California Stem Cell Program's $5.5-Billion Funding Request Might Be Its Downfall ( [link removed] )
Michael Hiltzik, Los Angeles Times | 12.08.2019
The ballot initiative fails to justify nearly doubling CIRM’s funding and renders the program immune to legislative oversight, despite its immense demand on taxpayer resources.
SURROGACY
-------------------------
Buyer Beware: A Maryland Surrogacy Agency Was Scamming Vulnerable Hopeful Parents ( [link removed] )
Ellen Trachman, Above the Law | 01.08.2020
The Surrogacy Group promised its clients services like matching intended parents with gestational surrogates, assisting clients with the surrogacy process, and managing funds. In many cases, however, the group’s owner pocketed the money, leaving both surrogates and intended parents high and dry.
SUBSCRIBE ( [link removed] ) | WEBSITE ( [link removed] ) | ABOUT US ( [link removed] ) | WHO WE ARE ( [link removed] ) | CONTACT ( mailto:[email protected] )
( [link removed] )
-------------------------
This e-mail was sent to [email protected] by [email protected].
Center for Genetics & Society, 1122 University Ave., Suite 100, Berkeley, California 94702
If you no longer wish to receive commercial e-mail messages from [email protected], please select the following link: Remove ( [link removed] ).
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