The latest updates for December 1, 2022


([link removed])


CF Foundation Responds to Vertex Copay Assistance Program

The Foundation
released a statement ([link removed])
([link removed])strongly urging Vertex to swiftly address its decision to significantly decrease the amount of copay assistance they provide to people with CF, and to ensure no additional burden is placed on the CF community and no person with CF will go without or lose access to essential treatments.

Read the statement » ([link removed])




Ask the Experts Your Questions at a Live Q&A

Have a question following this year’s North American Cystic Fibrosis Conference?
Get the answers from CF research experts ([link removed]), Raksha Jain, MD, and Jennifer Taylor-Cousar, MD, December 6 at 7 p.m. ET/4 p.m. PT during a live session moderated by James Lawlor, an adult living with cystic fibrosis.

RSVP to the Q&A » ([link removed])


([link removed])




Vote Now for Your Favorite BreatheCon Design

This fall, adults living with CF submitted their original creative work for our BreatheCon swag design contest.
Now you can vote on the design to be featured ([link removed])
on our 2023 swag. Cast your vote by December 15.

Vote now » ([link removed])
% link:[link removed] name="PASTEUR link" content="" %]




Embracing the Realities of Aging With CF

When Larissa Marocco, an adult with cystic fibrosis, noticed her vision becoming increasingly blurry, she panicked. Larissa’s concerns subsided after she realized she was experiencing normal signs of aging and
she reflected on how grateful she is ([link removed])
to reach middle age.

Read Larissa ([link removed])


([link removed])




WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


([link removed])
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]


www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US

Got this as a forward? [Sign up]([link removed]) to receive our future emails.

[Opt out]([link removed]) of this mailing list |
Opt out ([link removed])
of all CFF emails

This email was sent to [email protected].
To continue receiving our emails, add us to your address book.