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Support CGS on Giving Tuesday, November 29th!
Your contribution helps bring social justice to the center of public and policy debates on human biotechnologies. The Center for Genetics and Society is the leading US nonprofit confronting the cutting-edge challenges of human genetics and assisted reproduction. Your support for genetic justice is essential, and it is deeply appreciated.
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CGS Welcomes Three New Advisory Board Members
CGS warmly welcomes three new advisory board members: legal scholar Lisa C. Ikemoto, gender equity and justice advocate Kavita N. Ramdas, and educator and activist Milton Reynolds. We are grateful for their expertise in support of CGS, alongside current advisory board members Francine Coeytaux, Dorothy Roberts, and Alexandra Minna Stern. Find out more about each member of the advisory board.
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New Reports on Agricultural Gene Editing From UK Campaigners
Pete Shanks, Biopolitical Times | 11.01.2022
Three UK advocacy organizations recently released substantial reports about genetically modified food crops, critically assessing their impacts and demonstrating the need for more public engagement in policy formation and the regulatory process.
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GENE EDITING | GENOMICS | ASSISTED REPRODUCTION
EUGENICS | SURROGACY360 | VARIOUS
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This Personalized Crispr Therapy Is Designed To Attack Tumors
Emily Mullin, Wired | 11.10.2022
Researchers edited cancer patients’ immune cells using CRISPR to help them effectively fight tumors. A new study shows that this approach is feasible and safe, but it was successful only in a handful of patients.
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Gene Treatment for Rare Epilepsy Causes Brain Side Effect in 2 Children
Erika Check Hayden, The New York Times | 10.26.2022
A once-promising gene therapy that could turn off the gene causing a rare form of epilepsy is more dangerous than originally thought. The treatment resulted in a buildup of fluid in the brains of two children, causing the death of one.
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Podcast or Perish Episode 040: Françoise Baylis
Cameron Graham, Podcast or Perish | 10.03.2022
“We are always committed to trying to make ourselves better.” But when it comes to heritable genome editing, “do the means matter morally?” Is there a difference between things that are reversible or not; things people choose, others that they can’t?
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Cops Might Already Have Your DNA, Without Your Consent
Albert Fox Cahn, The Daily Beast | 11.14.2022
Much of our DNA isn’t private anymore, at least not from the police. While we can still protect against the nightmare of persistent genetic surveillance, we first have to change our focus from preventing DNA collection to preventing misuse and managing access.
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Historic Meeting Ushers In New Era In US Donor Conception
Ellen Trachman, Above the Law | 11.02.2022
At a recent meeting on gamete donation regulation, a diverse set of stakeholders discussed donor identity disclosure, family unit limits, and donor eligibility criteria. More opportunities are needed to continue public conversation around regulation.
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Breeding for Britain
Angelique Richardson, London Review of Books Blog | 11.04.2022
Anxieties in Parliament about global overpopulation, which inform policies that seek to encourage differential class fertility, are inflected by eugenic ideas about which groups should be allowed to reproduce––and should be consigned to history.
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John Fetterman gives us a chance to banish eugenic ideas of fitness
Jaipreet Virdi, The Washington Post | 11.04.2022
Media responses to Senator-elect John Fetterman’s debate performance following a stroke draws on conventional standards of fitness for office that are deeply rooted in eugenics. Rethinking them could produce better policies and insights.
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High Containment: Lab That Created Risky Avian Flu Had ‘Unacceptable’ Biosafety Protocols
Mara Hvistendahl, The Intercept | 11.01.2022
In America’s biolabs, hundreds of accidents have gone undisclosed to the public. Scrutiny of lab incident reports underscores that the patchwork of regulations for lab safety leaves substantial gaps in the oversight of research with dangerous pathogens. This article is part of the series “Experimenting with Disaster.”
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How scientists want to make you young again
Antonio Regalado, MIT Technology Review | 10.25.2022
Although little evidence supports the idea that technology to “reprogram cells” could reverse aging, investors are clamoring to fund Silicon Valley startups tinkering with the technique.
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These Doctors Admit They Don’t Want Patients With Disabilities
Gina Kolata, The New York Times | 10.19.2022
In anonymous focus groups, physicians admitted they attempted to discharge people with disabilities from their care because they found it challenging to accommodate them. Discrimination against these patients only adds to healthcare disparities.
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