From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date November 10, 2022 9:30 PM
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The latest updates for November 10, 2022


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Study Shows Potential to Reduce Medication Burden for People With CF Taking Trikafta


Results from the six-week Simplify study ([link removed])
found that people with cystic fibrosis enrolled in the study who had good lung function could safely stop taking one of two common CF medications — hypertonic saline or dornase alfa — without negatively impacting their health. Although the results represent an important milestone, there are
additional studies ([link removed])
underway to assess longer-term effects on health and provide additional insight into the implications of stopping therapies while on Trikafta. Individuals are encouraged to speak with their care providers before stopping any therapies.

Learn more » ([link removed])




Get the Coverage You Need During Open Enrollment

Your health needs can change from year to year — so do health insurance plans. Open enrollment is here and our team of
Compass case managers are here to help ([link removed]). Case managers can provide you with a side-by-side comparison of available plans so you can determine what coverage is best for you and your family.

Contact Compass today » ([link removed])


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Help Fight Superbugs by Passing the PASTEUR Act Now

The Pioneering Antimicrobial Subscriptions to End Upsurging Resistance (PASTEUR) Act is picking up momentum in Congress. Since its introduction last summer, this bipartisan, bicameral bill has gained dozens of Congressional cosponsors and ignited conversations about the importance of addressing antimicrobial resistance. It’s time for Congress to turn interest into action.
Call on your members of Congress today ([link removed])
([link removed])to urge them to pass the PASTEUR Act to jumpstart the development of desperately needed new antimicrobial drugs by passing the PASTEUR Act before the end of the year.

Take action now » ([link removed])




Watch CF FamilyCon Recordings

Recordings from CF FamilyCon — a virtual community conference for people with cystic fibrosis and those who understand what it is like to care for someone with CF —
are now available to watch on YouTube ([link removed])
% link:[link removed] name="[link removed]" content="" %]. Watch sessions such as the opening keynote, “The CF Family: We’re All in this Together,” Q&A panel discussion, “Ask Me Anything: Adults with CF,” and more.

Watch on YouTube » ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


DONATE ([link removed])


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www.cff.org ([link removed])

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