An essay for caregivers
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Friday, October 14, 2022 | The Latest Research, Commentary, And News
From Health Affairs
Dear John,
In case you missed it, we hosted a briefing last week at Main Street
Connect in Rockville, Maryland. Watch the recording
from the event on our LinkedIn page, and sign up for our Events list
to receive updates about
our monthly programming.
Standing Up For My Sister
[link removed]
In her Narrative Matters essay, featured in October's Disability &
Health themed issue, Courtney Van Houtven discusses the importance of
integrating family caregivers
into the health care team for patients with intellectual disabilities.
In the piece, Van Houtven tells the story of caring for her sister,
Megan, who had Russell-Silver syndrome, after complications following a
heart surgery.
Despite initial improvements while staying in the intensive care unit,
Megan passed away after twenty-one days in the hospital. Van Houtven,
Megan's secondary caregiver, was not even notified.
"When I think of my sister's final hospital stay, I am grateful for
the times I had by her side, trying to make her feel less alone, trying
to advocate for her... But I regret that I was not able to be even more
a part of her care team," writes Van Houtven.
Van Houtven writes that health care is not set up for efficient
information exchange with families, and caregivers are not always
present when morning rounds occur at a patient's bedside
She writes that using forms with simple prompts-"Does your loved one
seem worse today?" or "What are you noticing that we should
know?"-could help caregivers prioritize communicating information that
is vital to treatment planning.
Van Houtven also narrates her story on the Narrative Matters podcast,
which you can listen to here
.
Read More
Elsewhere At Health Affairs
Yesterday one of our previously featured authors, Emily Wang of Yale
University, was recognized as one of the recipients
of the MacArthur Foundation's new "Genius" grant.
Wang has worked to improve the health of individuals and communities
affected by mass incarceration and has published several papers
in Health Affairs.
Elsewhere in Forefront, Sean Tunis and coauthors discuss the debate over
Transitional Coverage for Emerging Technologies
(TCET), which is expected to be a pathway for improving Medicare
coverage of new medical devices.
Two new articles were also published today as part of the Medicare and
Medicaid Integration series
produced with the support of Arnold Ventures
.
Amy Chepaitis and coauthors cover their CMS evaluation of the Financial
Alignment Initiative (FAI) demonstrations
,
noting that it can be helpful to have a Medicare-Medicaid alignment team
addressing integration issues at the state level.
Edith G Walsh and couauthors discuss four learnings from the FAI
that are not part of the Medicare Advantage CY 2023 Final Rule but may
be considered by Dual-Eligible Special Needs Plans (D-SNPs) to better
meet enrollee needs.
Are you enjoying articles from Forefront? Join Health Affairs Insider
to show your support for high-value health policy news, commentary, and
analysis.
[link removed]
Disability And Health Spotlight: Art Enables
Health Affairs' Ryann Tanap and Vabren Watts interview Tony Brunswick,
executive director of Art Enables, about his organization and its work
and impact on artists with disabilities.
Listen Here
Daily Digest
Standing Up For My Sister
Courtney H. Van Houtven
Improving Medicare Coverage Of Innovative Technologies
Sean R Tunis et al.
A Team Approach Helps Align Medicare And Medicaid At The State Level
Amy E. Chepaitis et al.
Opportunities From The Financial Alignment Initiative To Increase
Integrated Care For Dually Eligible Beneficiaries
Edith G. Walsh et al.
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, and Health Affairs Sunday
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