CF Foundation Provides Updates on Newborn Screening Initiative
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Help Inform Future Virtual Conferences, Webinars, and More
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We want to hear from you! The CF Foundation is conducting a survey to learn which areas of science, care, and life with cystic fibrosis that community members are most interested in learning about and discussing with their peers. Your participation in this five-minute survey will help inform 2023 educational and connection opportunities, including virtual community conferences, research webinars, and other relevant content.
Take the survey »
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National Public Health Emergency Extended
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In response to the ongoing COVID-19 pandemic, the national Public Health Emergency (PHE) will be extended through the end of the year. The PHE allows Medicaid enrollees to maintain coverage through the end of the PHE period without needing to renew their coverage. If you’re on Medicaid, ensure you’ve updated your address in the Medicaid system so you can receive information about when you’ll need to renew your coverage.
Contact Compass to learn more »
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ROSE UP Live Celebration Now on YouTube
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Last week, members of the cystic fibrosis community came together to celebrate our third annual ROSE UP, a virtual fundraising event created and led by adults with CF. Watch the recording from this year’s event to hear from ROSE UP committee members, participants, and CF Foundation leadership about how they marked this special celebration.
Watch the virtual celebration »
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Watch our Grampions Celebration
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WE WILL NOT REST UNTIL WE FIND A CURE
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www.cff.org
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