Preventing big data research harms; racism & health equity primer; backbreaking work for fertility benefits; Gattaca at 25
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** August 17, 2022
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** Preventing Group Harm from Big Data Research
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** Are Research Ethics Regulations Part of the Problem?
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Artificial intelligence and machine-learning technologies used in big health data research may cause harm to entire groups of people due to generalizations and inferences that are codified by AI/ML systems. It’s time to consider whether the current human research regulations in the United States may actually prohibit comprehensive, ethical review of big health data research that may result in group harm, states an article in Ethics & Human Research. Read the article ([link removed]) .
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** Racism and Health Equity
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** New in Bioethics Briefings
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Racism has been declared a threat to public health by the U.S. Centers for Disease Control and Prevention, the American Medical Association, the American Public Health Association, and other medical and public health organizations. A new primer in The Hastings Center Bioethics Briefings summarizes the evidence and gives an action plan for bioethicists. Read “Racism and Health Equity.” ([link removed])
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** Backbreaking Jobs for Fertility Benefits
"A Black Mirror-Type Bind"
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A growing number of companies are enticing employees for high-risk manual labor and shift work jobs by offering insurance coverage for costly fertility treatments. “The very work that will pay for your fertility treatment may well be the kind of work you should not be doing when you’re having fertility treatments,” said Hastings Center research director Josephine Johnston in an interview with New York Magazine’s The Cut. “That’s a Black Mirror-type bind for people to be in.” Read the article ([link removed]) .
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** Gattaca at 25
Revisiting the Iconic Film's Concerns About Designer Babies and Eugenics
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“We talk about Brave New World, we talk about 1984, we talk about Frankenstein, we talk about Gattaca,” said Josephine Johnston in an interview with Slate about the film, which was released 25 years ago in October. It helps bring alive “some of those concerns and arguments about who we are as humans, who we are as parents, what it means to unconditionally love, and what is healthy, and what is good.” Read the article ([link removed]) .
The Hastings Center seeks to ensure responsible health and science policy and practice. We work to secure the wisest possible use of emerging technologies and fair, compassionate, and just health care for people across their lifespan.
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