The latest updates for July 21, 2022


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Meet the Winners of Our Golden Ticket Competition

Yesterday,
we announced the winners of our first-ever Golden Ticket Competition ([link removed]). The winners were awarded free lab and office space at University of California, Berkeley’s Bakar BioEnginuity Hub, where they will seek to address one of the biggest obstacles in developing successful genetic therapies for CF: delivery of a therapy to the cells.

Learn about the winners » ([link removed])


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Join us for NextBreath

You’re invited!
Registration is now open for NextBreath ([link removed]), a free virtual event August 9. People with advanced CF lung disease or anyone in the transplant process, their families, and caregivers ages 16 and older can share their unique experiences and connect and learn from others. Participants will engage in meaningful workshops, small group discussions, and more.

Save your seat » ([link removed])




Collaboration with Beam Extended Through End of 2022

As a part of our ongoing commitment to supporting the health and well-being of adults living with cystic fibrosis,
we have extended free access to the online platform, Beam, through the end of 2022 ([link removed]). No promo code necessary. If you are already signed up for Beam, your free membership has been extended.

Get moving with Beam today » ([link removed])


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FDA Announces New Evusheld Dosing Guidelines

In case you missed it,
the FDA revised the emergency use authorization for Evusheld ([link removed]), an antibody treatment for COVID-19 high-risk groups. The FDA recommends repeat dosing every six months to extend pre-exposure protection for people with suppressed immune systems, including those who are post-transplant. If you received Evusheld, contact your health care provider to see if another dose is appropriate for you.

Read the guidelines » ([link removed])




Works by the CF Community: Summer 2022

On the CF Community Blog,
we’re spotlighting six creators who are helping raise awareness of cystic fibrosis ([link removed]). Through sharing their stories on paper and on screen, they’re voicing the variety of ways people experience the disease.

Check out the CF community works » ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


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